@bentomn@hachyderm.io
@bentomn@hachyderm.io avatar

bentomn

@bentomn@hachyderm.io

app, web backend lately. #GameDev has-been. enjoyed #PostgreSQL. #infosec voyeur.

he/him in Oakland, California
Cover photo shows a fountain pattern in firework powder by Cai Guo-Qiang from the movie Sky Ladder (2016)

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bentomn, (edited ) to random
@bentomn@hachyderm.io avatar

“We conclude that long Covid is a real condition,” committee chair Paul Volberding, a professor emeritus of medicine at UCSF, said in a video conference Wednesday. “People suffering from it have to be listened to and have to be believed and deserve the best access possible to the management strategies.”

#LongCovid

Report captures long Covid’s disabling effects and policy challenges
https://www.statnews.com/2024/06/06/long-covid-disability-national-academy-of-sciences/

bentomn,
@bentomn@hachyderm.io avatar

“The Social Security Administration has not yet said what it will do with the report’s conclusions. The agency is in the process of updating its long Covid guidance.”

bentomn, (edited )
@bentomn@hachyderm.io avatar

For those interested I can recommend the recorded webinar.

The committee held a webinar to introduce the 250 page report for those with limited time.

#LongCovid

Edit: link may be broken after 24 hours, sorry

Webinar - speakers & slides 30min, Q&A 30min
https://www.nationalacademies.org/event/42

bentomn, (edited )
@bentomn@hachyderm.io avatar

The National Academies 250 page report on Long Covid is below, if the webinar doesn’t work out.

It’s a study group consensus document assembled over two years.

I find it reasonably easy to skim to find areas of interest.

It was sponsored by the US Social Security Administration.

#LongCovid

https://doi.org/10.17226/27756

bentomn, (edited )
@bentomn@hachyderm.io avatar

If you want to look at a summary of research directions, this Jan 2023 paper by Davis, McCorkell, Vogel, & Topol captured some of the ongoing work. It’s another nice collection of footnotes for specific topics.

#LongCovid

https://www.nature.com/articles/s41579-022-00846-2

bentomn, to random
@bentomn@hachyderm.io avatar

A social app for creatives, Cara grew from 40k to 650k users in a week because artists are fed up with Meta’s AI policies | TechCrunch
https://techcrunch.com/2024/06/06/a-social-app-for-creatives-cara-grew-from-40k-to-650k-users-in-a-week-because-artists-are-fed-up-with-metas-ai-policies/

bentomn, to random
@bentomn@hachyderm.io avatar

“Advertisers could soon be targeting hot-dog-combo enthusiasts who buy toilet paper by the truckload.”

Costco is building out an ad business using its shoppers’ data
https://www.marketingbrew.com/stories/2024/06/06/costco-is-building-out-an-ad-business-using-shopper-data

bentomn, to random
@bentomn@hachyderm.io avatar

“Hollywood Animal is a management sim about turning a bankrupt movie studio into a money printing machine, set in Hollywood’s golden age. [This game is] all about balancing a fickle audience and Tinseltown’s seedy underbelly. Maybe making some worthwhile art, too? Sorry, did I say ‘worthwhile art’? I meant to say “lots of money.””

Hollywood Animal is a nifty and detailed golden age simulator populated with eminently hireable alcoholics | Rock Paper Shotgun
https://www.rockpapershotgun.com/hollywood-animal-is-a-nifty-and-detailed-golden-age-simulator-populated-with-eminently-hireable-alcoholics

bentomn, (edited ) to random
@bentomn@hachyderm.io avatar

Op-comic: The long, long road of long COVID - Los Angeles Times #LongCovid
https://www.latimes.com/opinion/story/2024-06-06/op-comic-long-covid

bentomn, to random
@bentomn@hachyderm.io avatar

NIH deserves criticism for bungling their studies with bad group controls that produce muddy statistical results.

Let your reps know this is a transparent failure in government, and a science org should do better work.

Why Is NIH Perpetuating Long COVID Denial? - The American Prospect
https://prospect.org/health/2024-06-06-nih-perpetuating-long-covid-denial/

bentomn,
@bentomn@hachyderm.io avatar

“THERE’S A STORY YOU HEAR about multiple sclerosis, that doctors all claimed it too was “psychological” until magnetic resonance imaging came along and revealed big white patches all over the brain scans of its sufferers. Heck, coal country doctors dismissed black lung as “psychological” as late as the 1950s, and when a female scientist even claimed to have isolated the microscopic “germ” that caused polio in 1930, she was written off as a fabulist quack.”

bentomn,
@bentomn@hachyderm.io avatar

“It would take another 92 years before the scientific consensus would make its way back to the germ theory of multiple sclerosis, and when it finally did, with the 2022 publication of a 20-year longitudinal study of thousands of Veterans Administration MS patients, it didn’t exactly break the internet.”

bentomn,
@bentomn@hachyderm.io avatar

“RECOVER is really a disaster,” the researcher told the Prospect. “They’re wasting all this money on observational research and voodoo stuff like CBT [cognitive behavioral therapy] and sleep therapy … when if you’d given that funding instead to [specialists] we might have some understanding of why viruses are associated with these particular chronic problems by this point.”

bentomn, to random
@bentomn@hachyderm.io avatar

“The most mind-blowing moment [..] came when they managed to actually record the sounds that she heard in her ears. [..] “The NHS definition is that [tinnitus is] a phantom sound that your brain is creating, that it isn’t something ‘real’, so you should try to ignore it.”

Uneasy on the Ear: An Interview with Lola De La Mata
https://thequietus.com/interviews/lola-de-la-mata-oceans-on-azimuth-tinnitus-interview/

bentomn,
@bentomn@hachyderm.io avatar

“By having De La Mata place her ear into an anechoic chamber, with an ultra-sensitive microphone perched in her ear canal, they were able to provide significant evidence to the contrary.

“After the first recording of it, it was ‘There’s no way, this isn’t possible.’” They tried again with her breath held, and again with her tensing her ears, and again with other members of staff, but each time it became apparent that yes, the noises De La Mata hears are seemingly something physical.”

bentomn, to random
@bentomn@hachyderm.io avatar

“What really elevates it, though, is that this is a genuinely funny video game, one that truly captures that old Bullfrog sense of humour. The writing here is wonderful, and the voice acting incredible”

Galacticare Has Got That Old Bullfrog Spirit - Aftermath
https://aftermath.site/galacticare-review-impressions-pc-bullfrog-theme-hospital

bentomn, (edited ) to random
@bentomn@hachyderm.io avatar

National Academies of Science report on Long Covid arrived before summer.

What I pulled from the report is the recovery trajectory for non-hospitalized unrecovered. At one year, about 65-50% of the people studied still had fatigue and/or shortness of breath, and a 40-30% sized group still had muscle pain, headache, and/or chest pain.

For those unlucky to get a big hit, it may be a multi year recovery of function.

Be careful out there.

https://doi.org/10.17226/27756

bentomn, (edited )
@bentomn@hachyderm.io avatar

This is a 250 page report sponsored by the Social Security Administration in order to inform their organization about the condition and study the degree of disability.

The committee held a webinar to introduce the report for those with limited time.

Webinar - speakers & slides 30min, Q&A 30min
https://www.nationalacademies.org/event/42863_06-2024_long-term-health-effects-of-covid-19-disability-and-function-following-sars-cov-2-infection-report-release-webinar

bentomn,
@bentomn@hachyderm.io avatar

@PeterBronez good question. The system in the US is so difficult to navigate, what I’ve read on social media is it takes a lawyer, lots of time, and the benefits are too small. It may be failing millions of people, if the clinical statistics can be connected with rates in the survey data. It’s possibly designed to fail, as that’s what it does. Everyone wants a single test, that doesn’t exist yet. I think SSA is trying to understand where the science is at, and how to inform the medical systems.

bentomn, to random
@bentomn@hachyderm.io avatar

“The enthusiastic reception that small games have enjoyed in the first half of 2024 isn't something that will come and go. It's a full-blown age. This trend will continue, because the conditions that created it will continue”

The future of gaming belongs to weird little games | PC Gamer
https://www.pcgamer.com/gaming-industry/the-future-of-gaming-belongs-to-weird-little-games/

bentomn, to random
@bentomn@hachyderm.io avatar

“Team Fortress 2’s botting problem has escalated to doxing, swatting, and defaming people who call attention to it.”

'Team Fortress 2' Botters Use AI Voice to Defame Critic
https://www.404media.co/team-fortress-2-bot-hosters-use-ai-voice-to-defame-critic/

bentomn, to random
@bentomn@hachyderm.io avatar

Study Finds Only 1 In 3 Americans Can Name Their Representative’s Corporate Donors
https://www.theonion.com/study-finds-only-1-in-3-americans-can-name-their-repres-1851516531

bentomn, to random
@bentomn@hachyderm.io avatar

Tiny Glade Developers on Bevy, Proceduralism, Publishers & Cozy Games
https://80.lv/articles/exclusive-tiny-glade-developers-discuss-bevy-proceduralism-publishers-cozy-games/

bentomn, to random
@bentomn@hachyderm.io avatar

Long read on the state of Mexico by a Nat Sec oriented politics editor. Has “hugs not bullets” worked?

‘The Most Important National Security Issue Facing America, With the Least Amount of Attention’ - POLITICO
https://www.politico.com/news/magazine/2024/06/01/us-mexico-border-drugs-immigration-00160725

bentomn, to random
@bentomn@hachyderm.io avatar

“Notice [to consumers] is a fiction if it means having to sift through hundreds of thousands of pages of privacy policies. Consent cannot be meaningful when consumers don't have information to actually make real choices and they are forced to live their lives online as the digital economy becomes more and more entrenched in our everyday lives, including our lives at work.”

A top FTC official on the consumer privacy message the agency is sending to industry
https://therecord.media/ben-wiseman-interview-ftc-data-privacy

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