The past few days I’ve been taking creatine powder. From what I can see on YouTube, it’s used by gym enthusiasts to help them lift more weights and recover quickly.
As I’ve been feeling quite exhausted from walking a lot, I’ve been trying creatine, and I can tell you I’ve been feeling far less sore on the daily! But the weirdest thing is that I realised last night I was having half the dose as I need two teaspoons rather than one, but I’m still noticing the effects!
From the brief research I’ve seen, people with PKU have less creatine so it makes sense that the little dose has had such a profound effect.
I’ll also say consult with your dietitian, although I haven’t done so (but I plan to!). But if you have no health concerns and you feel your muscles aching for the slightest reason, maybe go get some creatine powder or tablets and give them a go!
@poconnor Oh this is exciting! Let me know what you find! Even if it’s “this is all junk science”, please let me know! I’d rather know now than later!!!
@poconnor@soheb Interesting. I never thought about adding more amino acids in addition to the formula that should in theory already contain enough of them.
Did you have low Tyr levels or were they normal and you just added more of it? Did you see changes in the blood tests after supplementing, like higher Tyr or even lower Phe?
@soheb@poconnor Oh, you don't? I always get both Phe and Tyr levels back for each test and thought this was standard.
On second thoughts, my question about possibly reduced phe levels is probably stupid. While tyrosine might block some phe from getting into the brain, I don't think there is a reason why this should be visible in the blood spots that hopefully none of us take from the brain. 😅
@caoimhin@poconnor so I've just realised my hospital has a MyCharts thing where they show the tyrosine levels, but in the emails they send to me, this is never revealed.
I have no idea what constitutes as high/lo tyr levels (for example, my results have been on avg is roughly 49 - my phe is avg 477).
@soheb@poconnor I realised only now that the norm values in the two different units that are in my results don't really match... They say 0.41-3.43 mg/dl (= 23-205 µmol/l) and 0-136 µmol/l.
Without actually calculating it, looking through my latest results, my average seems to be around 100 µmol/l, maybe a bit lower, with a range roughly between 40 and 160.
I also found a result where I had 35 and they said it was borderline low.
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