Bed rotting has always struck me as the term the press and government have decided to apply to all the Long Covid patients to cover up the enormous damage that has been done to peoples health. Now Long Covid ME/CFS outnumbers ME/CFS from all other sources about 5 to 1, possibly a lot more. The level of suffering out there in the world now is astounding and this is how our press and governments are responding to a growing crisis.
Being told to return to the office by millionaire/billionaire CEOs didn’t work so now we’re on to plan B, get the media to try to stimulate self-doubt and guilt in the workers, use their own feelings against them. Disgusting.
Obviously a reminder of the basic principle involved is needed, pay particular attention to the second panel: xkcd.com/150/
Flu gets worse in the afternoon, PEM usually better
Flu & friends usually cause some symptoms PEM does not – like soare throat, running nose, coughing, fever, while typical PEM-symptoms might be less prominent.
For me, it just feels different. I’m just fighting my first severe flu-like infection since CFS started, and it feels completely different even when the words to describe it are almost the same.
Den gibt es? Bei uns auf der Station hängt eine Karte, ich dachte die wäre ein Witz. Wobei ich fürchte, dass sie tatsächlich einer ist.
Meiner Meinung nach haben wir z.Zt. > 10 % Patienten, die eine depressive Verarbeitung ihres Post Covid haben. Hoffentlich schaff ich es mal, eine fundierte Fortbildung vorzubereiten. Fühl mich irgendwie damit überfordert.
As a middle-aged bloke, I think I would have traded this disease for having no legs, but average energy. Sure I would have been cut off from various exercises and activities, but I also would have been able to pursue a career, start a family, have an easier time with relationships, and have my share of hobbies, presumably.
An example of one of the things that really crushed me was my pursuit of guitar. About 25yrs+ ago I bumblingly started with simple tutorials and internet tabs, and after a couple years found myself really humming along, my learning curve surprising me. Unfortunately, only a couple years later I found that I kept injuring myself via playing, sometimes via throwing my neck or back out, or more often my finger joints hurting more and more, making it harder and harder to fret properly.
Unlike sports, which I was able to play in small doses in my 20’s, and which are a huge struggle for me today, I thought guitar would be something I could enjoy the rest of my life. Instead it became yet another pursuit in which I pushed through my CFS difficulties, only to be betrayed by my own body.
These doctors claiming psychosomatic causes are functionally nothing but quacks when it comes to true CFS/ME.
Jaa – irgendwie. Aber das Schütteln am Schluss – wo ist die Geheime Sondereingreiftruppe der Internationalen Vereinigung der Katzenfreunde, wenn man sie mal braucht?
Temperature is a big issue for me and it worsening like that is usually a sign my body is under more strain (overdoing it, fighting off a random virus, too much PEM).
Issues regulating our core temp are not unusual for me/cfs.
I'm worried for you in the summer too. It's just been summer here and I do things like fill a squirt bottle with icy water and spray it over myself. Can you get some fans?
So you left your wife alone so she can juggle two kids, the household, her elderly parents and work, so that you can lay under a blanket most of the time?
Holy Shit I am sorry. I didnt really look and thought it was “asklemmy” or “unpopular opinion” without checking. I am very sorry for that negative comment. Should have checked the community before posting.
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