ME/CFS (kbin)

Journal article: Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients (www.mdpi.com)

Abstract: Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients with ME/CFS, and the majority of...

NEWS: Chairman Bernie Sanders Releases Long COVID Moonshot Legislative Proposal | The U.S. Senate Committee on Health, Education, Labor & Pensions (www.help.senate.gov)

WASHINGTON, April 9 – Sen. Bernie Sanders (I-Vt.), Chair of the Senate Health, Education, Labor, and Pensions (HELP) Committee, today released a draft legislative proposal to address the Long COVID crisis that is negatively impacting the health of some 22 million Americans....

Frontiers | Longitudinal cytokine and multi-modal health data of an extremely severe ME/CFS patient with HSD reveals insights into immunopathology, and disease severity (www.frontiersin.org)

Precis (full article in link): Introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) presents substantial challenges in patient care due to its intricate multisystem nature, comorbidities, and global prevalence. The heterogeneity among patient populations, coupled with the absence of FDA-approved diagnostics...

The likes of the BBC, Guardian, and Daily Mail are set to have their own disinformation used against them [click through to listen to the article] (www.thecanary.co)

A campaign group will be targeting UK media outlets during global ME Awareness Day – calling out what it calls the corporate media’s systemic “mis-and-disinformation” relating to this chronic illness....

Sweeping chronic fatigue study brings clues but not clarity to mysterious syndrome (deep phenotyping study) (www.science.org)

The new work, published this week in Nature Communications, affirms that ME/CFS is unquestionably biologically rooted, says Avindra Nath, clinical director of the U.S. National Institute of Neurological Disorders and Stroke, who led the study. It revealed brain activity differences, along with immune and other abnormalities, in...

CFS: number of patients is expected to double due to long-term effects of the COVID-19 pandemic: Scientists at MedUni Vienna have now identified possible biomarkers that could improve the diagnosis and treatment (www.meduniwien.ac.at)

The study by Eva Untersmayr-Elsenhuber and her team from MedUni Vienna's Center for Pathophysiology, Infectiology and Immunology builds on earlier research on immune disorders and the intestinal barrier function in patients with ME/CFS. It is well known that ME/CFS patients often differ greatly in the clinical manifestations of...

Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Rohrhofer et al 2024 (full text) (www.mdpi.com)

Abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease characterized by profound fatigue, post-exertional malaise (PEM), and neurocognitive dysfunction. Immune dysregulation and gastrointestinal symptoms are commonly observed in ME/CFS patients. Despite affecting approximately 0.89% of the...

April 3-4 The 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID (free virtual registration) (conferencia-emsfc-pos-covid.pt)

The 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID aims to raise awareness, clarify misconceptions, promote understanding, and stimulate discussion among healthcare professionals, investigators, policymakers, patients, and community representatives on the clinical manifestations,...

A break in mitochondrial endosymbiosis as a basis for inflammatory diseases (Abstract) (pubmed.ncbi.nlm.nih.gov)

Mitochondria retain bacterial traits due to their endosymbiotic origin, but host cells do not recognize them as foreign because the organelles are sequestered. However, the regulated release of mitochondrial factors into the cytosol can trigger cell death, innate immunity and inflammation. This selective breakdown in the...

Frontiers | In vitro B cell experiments explore the role of CD24, CD38, and energy metabolism in ME/CFS (www.frontiersin.org)

IntroductionDisturbances of energy metabolism contribute to the clinical manifestations of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Previously, we found that B cells from ME/CFS patients have an increased expression of CD24, a modulator of many cellular functions including those of cell stress. The relative...

#MEAction Is Offering A Very Modified Movement Class (www.meaction.net)

MEAction is thrilled, once again, to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga to provide a 30 minute, virtual very modified movement class on Thursday, Feb 8th at 11am PT/2pm ET/7pm BST that has been crafted specifically for people with ME. The whole class will be lying down and can be done from bed....

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