Please visit our sister community mecfs.
This magazine collects helpful resources. Please visit mecfs at the following links:...
DePaul Symptom Questionnaire - Post-Exertional Malaise short form (DSQ-PEM) (www.researchgate.net)
Link to DePaul questionnaire on ResearchGate
Physios For ME (physiotherapists/pt): One sheet printout: How To Work Safely With People With ME/CFS (www.physiosforme.com)
We often hear from people with ME seeking our support because they have to see a physiotherapist for a problem other than ME. This could be something like a shoulder injury, or following knee surgery, or neck pain etc....
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Grach et al, 2023 (www.mayoclinicproceedings.org)
This is the new Mayo Clinic Proceedings on ME/CFS...
NZ Support for People with MECFS (m.e.awareness.nz)
National and local support agencies and groups for people with ME/CFS in New Zealand.
Canadian Consensus Criteria: "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols" (www.meresearch.org.uk)
Please note this is a pdf
Myalgic encephalomyelitis: International Consensus Criteria (www.ncbi.nlm.nih.gov)
Carruthers BM, van de Sande MI, De Meirleir KL, Klimas NG, Broderick G, Mitchell T, Staines D, Powles ACP, Speight N, Vallings R, Bateman L, Baumgarten-Austrheim B, Bell DS, Carlo-Stella N, Chia J, Darragh A, Jo D, Lewis D, Light AR, Marshall-Gradisbik ...
American ME and CFS Society (ammes.org)
The American ME and CFS Society is dedicated to serving the needs of patients and caregivers through support, advocacy, and education. We seek to channel patient perspectives to government agencies, committees and initiatives, and to unify the ME and CFS community by pursuing the common goals of expanding research, increasing...
European ME Alliance - Home Page - A Voice for People with ME in Europe (www.europeanmealliance.org)
European ME Alliance
Canada National ME/FM Action Network (www.mefmaction.com)
ME/FM Action Network is a Canadian, registered, non-profit organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome (FMS) through education, advocacy, support, and research. Copyright 2020 National ME/FM Action Network
The Associated New Zealand ME Society (anzmes.org.nz)
Associated New Zealand ME Society (ANZMES), serving New Zealanders with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome since 1980. ANZMES objects in the constitution are:...
The ME Association - The ME Association United Kingdom (meassociation.org.uk)
WE HELP PEOPLE WITH...
Emerge Australia – National Australian not-for-profit organisation for information, support and advocacy about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). (www.emerge.org.au)
European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe (kbin.social)
Abstract (link goes to full text)...
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management - Bateman et al, 2021 (www.mayoclinicproceedings.org)
Abstract (link goes to full text)...
Resources | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) - CDC (www.cdc.gov)
CDC's ME/CFS Resources - toolkit and resources on page
ME/CFS Resources (NIH) (www.nih.gov)
ME/CFS resources for researchers and patients.