Announcement from Jarred Younger: 012 - Good News from the FDA - Time to Start Scanning! (m.youtube.com)
cross-posted from: kbin.social/m/mecfs/t/979041...
We're not sick, we're a social phenomenon (lemmy.world)
cross-posted from: lemmy.world/post/14342827...
Forced treatments, sectionings, deaths, assisted suicides: the reality of ME/CFS in the UK in just three months of 2024 (www.thecanary.co)
cross-posted from: kbin.social/m/anarchism@lemmy.ml/t/955050...
Family is sick and now I can play that nice game of (swg-empire.de)
Long Covid Awareness Day: Wir sind alle vulnerabel. Am 15. März ist Internationaler Long Covid Awareness Day. Millionen Betroffene warten auf Therapien. Wie steht es um sie? (taz.de)
cross-posted from: feddit.de/post/10021761...
‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal | George Monbiot (www.theguardian.com)
cross-posted from: kbin.social/m/mecfs/t/891917...
Health outcomes for Long COVID are comparable with ME/CFS (news.griffith.edu.au)
cross-posted from: kbin.social/m/mecfs/t/898486...
Long-COVID mit Antikörpern behandeln? (www.deutsche-apotheker-zeitung.de)
Three Long Covid cases could be healed with corona antibodies....
I somewhat find myself represented in this almost 50 years old sketch (www.youtube.com)
Only back then it was absurdist humour.
My new hymn (youtube.com)
Clues to a better understanding of chronic fatigue syndrome emerge from a major study (www.kpbs.org)
cross-posted from: lemmy.world/post/12465570...
Sweeping chronic fatigue study brings clues but not clarity to mysterious syndrome (deep phenotyping study) (www.science.org)
cross-posted from: kbin.social/m/mecfs/t/856180...
Long Covid ‘brain fog’ may be due to leaky blood-brain barrier, study finds (www.theguardian.com)
cross-posted from: lemmy.world/post/12271958...
Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Rohrhofer et al 2024 (full text) (www.mdpi.com)
cross-posted from: kbin.social/m/mecfs/t/844768...
Anyone else's acceptable temperature going down?
A while ago I moved in with my parents to relieve my wife from having to juggle two kids, the household, her elderly parents, her work and me. And my parents have this fancy digital thermostat I can control from my smartphone....
ME Research UK and the ME Association announce funding for a study that aims to create a diagnostic test for ME/CFS (www.meresearch.org.uk)
cross-posted from: kbin.social/m/mecfs/t/827670...
Functional and Morphological Differences of Muscle Mitochondria in Chronic Fatigue Syndrome and Post-COVID Syndrome (www.mdpi.com)
Antivirals
Has anyone here tried antivirals?
Anyone diagnosed with FND?
Functional Neurological Disorder aka Dissociative neurological symptom disorder aka Conversion Disorder?...
Was bed bound with post covid for 2-1\2 years now I have a somewhat normal life.
So the biggest thing I had to figured out was all my allegeries. Fragrance is the biggest one, its in everything and I can’t be around it at all. It took 6 months to get rid of all of it and is a constant effort to keep out of my living space. I have met multiple other people who has this same allergy. Cutting gluten out of my...
More recent research news, something about T-Cells (solvecfs.org)
I’m too brain fogged to really understand it, but it seems like the ME/CFS research is also having good results.
Long Covid: Zürcher Forschungsteam findet Ursache der Symptome (www.20min.ch)
Roughly translated, the immune system keeps fighting. They found the proteins persisting in the blood of Long Covid patients. They lead to blood clots and other stuff. Most importantly this can be tested for....
Medication works –does it?
Yesterday was a strange day. Until noon I was well as usual – 90 % on my new, cfs adapted wellbeing rating (would have been 45 % pre-cfs…). So, great day! Then I started to decline. fled work at 14:45. Was barely able to reach home. rested. watched a movie with the very discerning feeling I might overexert me by watching....
New insights from the German exercise physiologist on how to pace with ME/CFS (especially in order to avoid viral reactivation through overexertion) (old.reddit.com)
cross-posted from: swg-empire.de/post/446692...