tomkindlon

@tomkindlon@disabled.social

95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.

With ME/CFS 35 years, severely affected 29 years. Health has deteriorated post Covid (March 2022).

Irish ME/CFS Association* trustee 26 years. 26 publications in peer-reviewed journals.

MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie

ahimsa_pdx

@ahimsa_pdx@disabled.social

Vegetarian, book lover📚 Living with ME/CFS and Dysautonomia since 1990 ♿️ She/Her

Please use #AltText on images/GIFs❤️

Yes, I'd love to see a photo of your cat😻

Avatar photo: Old photo of my cat, tabby with white chest & paws. Banner photo: Trees in a park with green leaves.

Just my posts, no boosts = https://justmytoots.com/@ahimsa_pdx?public_only=true

#MEcfs #PwME #Dysautonomia #POTS #LongCovid #Disability #Accessibility

s4me

@s4me@med-mastodon.com

We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.

IrishMECFSAssociation

@IrishMECFSAssociation@mastodon.ie

The Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association – for Information, Support & Research.

NB: Posts should not be considered advice.

Registered Charity Number: 20100254
CHY 22039

ImmedicableME

@ImmedicableME@mastodon.online

Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. A “really nice guy, for a girl.” Never knowingly unkind—it’s ok to let me know if something I post is problematic. #Lesbian. She/her. United States.

AndrewGiffordphotography

@AndrewGiffordphotography@mastodon.social

Hello,

I'm using photography to help raise awareness about living with a long-term multi-system health condition ME/CFS, aka ME or Chronic Fatigue Syndrome.

You can view the project - work in progress - via: https://glass.photo/andrewgifford

I'm here to hang out, learn, make connections, share tid bits and photo-related things I've enjoyed.

Happy to receive DMs, provided polite etc.

Andrew
Bristol, UK

Born at: 335.42 ppm

#photography #documentaryphotography #MECFS #chronicfatiguesyndrome

brianvastag

@brianvastag@sciencemastodon.com

Former science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Grew up in Wisconsin. Occasional SCUBA diver.

corrosivedream

@corrosivedream@troet.cafe

Someone with severe permanent long Covid symptoms after mild Covid19. I post info on these topics.

halcionandon

@halcionandon@aus.social

Another T*****r immigrant. It’s nice here. Better profile pending. See intro: https://aus.social/@halcionandon/109312394494110821 Please be mindful that I’m energy limited & it takes a lot of effort to reply to posts, boost, ie I’m putting a lot of effort into our interactions. Feel special! I’ll likely forget to reply or take a while (weeks/months) if having a bad time. #Science #Writing #MMT #Auspol #MedicalResearch #Healthcare #NDIS #ChronicIllness #pwME #MECFS #LongCovid #Disabled #NEISVoid #Melbourne, #Australia

Eka_FOOF_A

@Eka_FOOF_A@spacey.space

Pop culture illiterate.

We are all part of this biological entity called Earth.

The more I learn, the more I know I don't know. This is OK. Nobody can be an expert in everything. Lean on each other’s expertise.

Grok all the hues, shades, tints, tones, and intensities of everything you encounter and learn. Nothing is back and white, and even shades of gray often fail.

#painter #sculptor #photographer #programmer #PCB #designer and #farmer #electronics #rockets #art

MEActNOW

@MEActNOW@mastodon.social

#MECFS patient. Support #LongCovid #LC

ME/CFS affects 🌍 Ppl of all Races, Ages, Genders. #MillionsMissing #PWME orgs need research funding$$

#BLM IFollowBack
#Vegan
https://spoutible.com/MEActNOW

halcionandon

@halcionandon@disabled.social

I’m severely #disabled by #ChronicIllness.

I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off with #LongCovid. Hi #NEISvoid

Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking patients?)

Need help with #accommodation #NDIS #GP #carer/ #caregiver & navigating the system. LMK!

podkaynelives

@podkaynelives@universeodon.com

Democracy, standing with Ukraine, #LongCOVID, disability rights, gaming, coping with (waves hands around) all of this.

#SciFi, #DragonAge, #xcom2, #civ6, #StarTrek, #ofmd, #SteamDeck, #CatsOfMastodon, #Chvrches, #Labrinth, #PeterGabriel, #KateBush, the list goes on.

Profile pic description: A gray tuxedo cat faces the camera with autumn leaves in the background.

Header picture: the Mastodon version of the "This is Fine" meme with a happy Mastodon and green plants.
#Fedi22

martinruecker

@martinruecker@metalhead.club

Journalist. Threema: TUFVC84Z

ChronicIllnessHumor

@ChronicIllnessHumor@mastodon.social

Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for a while. https://mybodyistryingtokillme.com/
https://chronicillnesstees.etsy.com
#chronicillness #autoimmune #funny

ezchili

@ezchili@mstdn.social

Science, history of ideas, disability, ME/CFS, photography, film, boardgames, curiousity.

#pwME #MEcfs #ChronicIllness #HistMed #NEISvoid

Profile picture description: Photo of ez (me) outside in the sun, smiling, with sunglasses on.

Banner picture description: Close up photo of yellow and green chili fruits growing on a plant with lots of leaves. Extra info not in picture: the chili is called Hot Lemon.

hollie

@hollie@social.coop

(she/her)
Enthusiastic about nature, kindness, puns, tea, personal websites, lichen, bags, space, hobbits, social justice, ending climate change, naps.

I love reading, watercolors, laughing, bookbinding, bicycling, paddling, vegan cooking, sewing, and ham radio.

Living w/ fibro & MECFS, MCAS, anxiety, ADHD.

GenX, happily married to https://social.coop/@gregtitus for 29 yrs, mom of two adult kids (one hard-of-hearing, one autistic trans). Wears heart on sleeve. Trans rights are human rights.

Romatowski

@Romatowski@mastodon.social

Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.

riffreporter

@riffreporter@mastodon.social

Blicke unter die Oberfläche! Damit du mehr siehst als nur die Nachrichten des Tages. Unabhängiger #Journalismus #werbefrei. #Umwelt | #Wissen | #Tech | #Klima | #International. We love #Longreads. 100+ Autorinnen & Autoren, 1 #Genossenschaft. #fedi22 #RiffReporter #newstodon Ihr findet uns auf https://www.riffreporter.de/de

afelia

@afelia@chaos.social

Demokratie wachsen lassen.

ContraindiKate

@ContraindiKate@disabled.social

Currently bedbound, I'm mostly here for your pictures of rocks, trees and moss, of cats and dogs, of train journeys and long walks in the woods. Nerd for fountain pens and excellent stationery.

#MEcfs #Dysautonomia #Neuropathy #POTS #MCAS #LongCOVID
#DisabilityJustice #AmbulatoryWheelchairUser
#COVIDisNotOver
#WearAMask
She/her
EN/DE
Migrantin in Wien.

♿🏳️‍🌈🏳️‍⚧️❤️

Profile pic is a photo of wilty two red echinacea blossoms on a leafy green background.

docjosiahboone

@docjosiahboone@wien.rocks

:: Internist mit Interesse an COVID-19. Kein Virologe :: Obsession: John Coltrane & Rapid Wien :: Stadtradler :: WienLiebe :: und ein bisschen Esperanto (komencanto)

bhawthorne

@bhawthorne@infosec.exchange

Long Covid/PASC/CFS since Oct. 2022.
My brain is different.

I don’t have strong gender or pronoun preferences. He or they or per is fine.

New English naturalist descended from privileged white European settlers, now living on Pocumtuck and Nipmuc land.

Anti-racist, anti-fascist, anti-bigot.

Repeal the 2nd Amendment to the Constitution of the USA.

Warning: I sometimes post full-length blog posts here.

Header pic: Coastal Plain Pond in SE Massachusetts.
Thumbnail pic: Me looking out the window and remembering.

DenisCOVIDinfoguy

@DenisCOVIDinfoguy@aus.social

Sharing info on COVID since the start of the pandemic

#PandemicIsNotOver

💻 IT Systems Administrator
💪 GYMaHOLIC (COVID forced me to invest in a home gym)

utopia_ultima

@utopia_ultima@troet.cafe

Saarländerin, Bj. '69
pro 🌍 🇪🇺 🏳️‍🌈♀️🕊️

Mag Humor, den Wald, Vögel, Insekten, naturnahen Garten, Blumenwiesen, Stille, Krimis.

• Ex-Krankenschwester u. -Kodierfachkraft • EU-Rentnerin •

Tröte u.a. zu #naturgarten #mecfs #fibromyalgie #resilienz #TeamZuversicht #care #IchBinArmutsbetroffen #saarland

Ich mag die Interaktion.

Sagt dein Profil etwas über dich, folge ich gern zurück.

InayaShujaat

@InayaShujaat@paktodon.asia

Extremely outspoken #Muslim woman living in #Aotearoa (#NewZealand).

Suffer from: #Migraine, #Tourettes, #POTS, #OCD, #Fibromyalgia, #ChronicFatigue, #IBS.

Enjoy: #Crochet, #Knitting, #Cricut, #LoomBeading.

Believe: #PalestineWillBeFree, #IslamophobiaIsBigotry, #TransWomenAreWomen, #HumanRightsForAll, #ApartheidIsGenocide

Frieke72

@Frieke72@mastodon.social

antiaall3s

@antiaall3s@chaos.social

★ Es gibt nix Gutes, ausser 😷 toot es
★ Boosted means boss move
★ Weckt mich wenn Revolution ist
★ Alpaca 🦙 Ozelot 🐆 Axolotl 🦎
★ Allen alles
★ Auf allen Spektren

Community care for mental health, mutual aid for all.

Life is difficult in these times, feel free to ask me for help.

write: D/E/F/ read: Sp/It/Port

#Muskodus #Twexit #LongCovid #UrbanLoveWarrior #TootFinder #FamilyAbolitionist

LLS

@LLS@wandering.shop

Science fiction writer. Fiction editor. Book designer. Publisher. Sporadic blogger. Not as tough as I seem 🏳️‍🌈 she/her

#SFF #ScienceFiction #science #books #design #CSS #tech #healthcare #NoAI #culture #climate #racism #LGBTQ #justice #USpol et merde

#MECFS #LongCovid

support: https://ko-fi.com/lauras

was @/lauras on birdsite

horachio

@horachio@aus.social

Was RaRa on Twitter. Appreciate critical thinking. Very into-resting. Reality TV tragic … I know, I know. Teacher and creative writer when I have spare 🥄🥄Existing in the #MECFS #Fibromyalgia #ChronicIllness void. NQ Aus. Bindal/Wulgurukaba

antdesros

@antdesros@jasette.facil.services

Intérêt pour la philosophie, les sciences de la nature, les langues, l'histoire, l'informatique libre et les sciences sociales.

Marcuscjhartmann

@Marcuscjhartmann@mastodon.social

Lebe lang und in Frieden 🖖
#LongCovid #Fahrradfahrer, #Healermain, born 361ppm
zert. IT-Sec, gepr. Webentwickler

jrefior

@jrefior@hachyderm.io

Supporter of progressive economic policy. Aspring small business owner. Volunteer lawyer. Amateur economist. Software developer.
#economics
#BoycottMeta

kikkih

@kikkih@mastodon.social

Toots and boosts in english and scandinavian languages, as I learn and come across things I find interesting. Boost and/or star toots if you find some of them interesting 🙂

🇬🇧🇳🇴🇸🇪🇩🇰

Please, feel free to correct my english!

qwertziop

@qwertziop@digitalcourage.social

IPA: ˈɑki
Avatar: https://shark.cyber77.de/@nocci

das sind keine Tricks,
das ist die Magie des Augenblicks

Themen dieses Ziegeprofils sind Softwareentwicklung, Vögel, Musik, selten Cineastisches, manchmal post covid, hin und wieder Rants. Darüberhinaus wird zum Themenschwerpunkt Sonstiges gedingst.

Ich poste momentan keine Bilder auf pixelfed https://portfolio.pixel.tchncs.de/qwertziop

#nobots

#postcovid

bananamangodog

@bananamangodog@aus.social

Philosopher attempting #permaculture design while existing with #MECFS #Fibromyalgia. Equity advocate. Anti-capitalist. Arch Linux user. Promoter of FOSS.

wolfsbruder

@wolfsbruder@babka.social

Who am I, and Where am I going?
An escapee from the hell site of birds.

Jewish and proud of it. Will not put up with bullshit, bigotry, racism, fascism, white supremacy, or, most importantly, anti-semitism.

Raised by survivors of the shoah. Escaped to the west from the DDR in the 70s, family originally from Chornobyl/Pripyat, both Ukraine and Belarus

I am also a twitch streamer for gaming and my DJ sets [on Mixcloud too]

#mazeldon #fibromyalgia #mecfs #longcovid #POTS #cptsd #ptsd

tenorune

@tenorune@zirk.us

Berlin, with Austin roots
(he/them)
#Ethics #Solidarity #DeepAdaptation #AntiFascist #CureAbleism #Neurodivergent #AuDHD #LGBTQ+ #ENM #StarWars #Tolkien

Trekhausen

@Trekhausen@todon.eu

Disabled Anarcho-Communist.

I have #MECFS caused by Covid - form of #LongCovid - and #ObsessiveCompulsiveDisorder

I am #vegan, love #StarTrek, and interested in #MutualAid #Sociology #FOSS #SciFi #ProWrestling

Trying to keep learning and unlearning and do what I can as part of an #AntiCapitalist #Intersectional praxis.

#MaskUp because #CovidIsNotOver and #CovidIsAirborne

No borders. No nations. Stop deportations.

#FreePalestine

Please see 'Mastodon use' pinned toot.

Based in UK.

Profile image: M.V. Louise Michel boat sailing in the sea with a low sun through the clouds.

Cover image: Emma Goldman speaking to a crowd in Union Square, New York.

Below are links I want to help promote - will try to rotate regularly!

PhoenixMe

@PhoenixMe@mastodon.social

Bed-bound activist with severe ME/CFS. One of the #MillionsMissing. If I had any spoons, I'd be dangerous. #AusPol, #USPol, climate justice, social justice, crochet. Views expressed are my own. Boonwurrung country, Australia

jahleesu

@jahleesu@disabled.social

#queer | #MECFS | she/her | #autistic | Goth/Nerd multiclass 😜🐙

Old account is jahleesu@mastodon.social

melsdung

@melsdung@nrw.social

2021 habe ich meinen alten Twitter-Account reaktiviert, um mich im Netz sichtbar für #NoCovid einsetzen zu können. Seither im #TeamVorsicht und #DieMaskeBleibtAuf.
Wo ich aber schon mal da war bzw. bin, lese und schreibe ich natürlich auch über anderes, was mich interessiert oder wo ich gesellschaftlich-politischen Handlungsbedarf sehe, also z. B. ganz akut bei der Klimakrise.

mikkas_world

@mikkas_world@chaos.social

jetton

@jetton@mastodon.online

Nerd/geek since card-punch days. He/him. Recovering Aspergerian. Long retired. Trans rights are human rights. Oxford comma.

britt

@britt@mstdn.games

Instance Admin for mstdn.games.

I’m loud about what I love! ✦ #Autistic / #ADHD ✦ Wife to @craftykraken 🏳️‍🌈 in #Canada ✦ Mental Health, #Disability & Neurodiversity Advocate. ✦ #Hockey fan ✦ Crazy Cat Lady ✦ She/Her

University student! Studying Psychology and Philosophy.

Now playing: #VR games, #Cyberpunk2077, and #BaldursGate3. I also love finding new indies. Suggestions are welcome!

I have #LongCovid and #Autoimmune disease - my time and energy are limited. Please be kind. 💜

Cetraria

@Cetraria@neurodifferent.me

InfoSec educator, technical writer and editor. #MCAS #POTS #NEISvoid

ninahatfield

@ninahatfield@mstdn.social

Writer, Learner, Mythologist, chronically ill with #MECFS
migrating from Twitter https://mstdn.social/@ninahatfield I'll be funneling my hypervigilant fire season and emergency preparedness posts to my secondary account: ninahatfield@m.ai6yr.org

Avatar: pale white woman with long brown hair smiling towards camera
Header: view from ferry boat of salt water and a green island in the distance with clouds in the sky and reflecting on water

#PWME #Mythology #ChronicFatigue #CFS #Resting #CoResting #Pacing #PEM #MCAS

AshleyMarineP

@AshleyMarineP@mastodon.social

🍿 #Films #Director #Producer and digital consultant, MD https://mastodon.social/@hightailentertainment

👾 Lover of #Storytelling #Gamification #Psychology #VideoGames and other deliciously nerdy things

☕ Anti-hustle culture and #SelfCare

💜 Hobbies incl #StreetPhotography #BoardGames and #Cooking

💪 Living with #ChronicIllness #EhlersDanlos #POTS #MCAS #KidneyDisease because if anyone is going to kick my ass, is going to be me

🏳️‍🌈 #Bisexual #ExJW devil-woman

💙 #Parenting with https://mastodon.world/@danpuzey

CyruxiME

@CyruxiME@toot.aquilenet.fr

Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting.

EN/FR toots mostly about chronic illness and disability, interspersed with world news, tech and (sometimes) politics.