@poconnor@pkutalk.com
@poconnor@pkutalk.com avatar

poconnor

@poconnor@pkutalk.com

Author: fiction & non-fiction

Speaker & Advocate: PKU & Brain Injury

Books
#TheRedHatStories
#LivingWithPKU
#LivingWithMildBrainInjury

#RareDisease #BrainInjury #PKU #ShortStories

https://pigpen.start.page

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poconnor, to random
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Easy PKU lunch ideas: Raisin Scones
Tasty, fluffy, protein-free raisin scone recipe. Baking made eash with pictures!
For people on diets like , .
https://pigpen.page/pku-raisin-scones/

poconnor, to random
@poconnor@pkutalk.com avatar

Easy Heatwave recipe for . No cooking!

This fennel and 'cheese' salad can be made phe-free, low-protein, or add protein as needed. Quick & easy, without standing over a hot stove 😁

https://pigpen.page/shaved-fennel-and-cheese-salad/

poconnor, to random
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Easy Lunch ideas!
2g protein frm the new @Genius Ciabatta, filled with cucumber, pickle, & protein-free cheese (@Violife)

Ciabatta found @Ocado

soheb, to random
@soheb@pkutalk.com avatar

It's honestly baffling how much having low phenylalanine has changed my life!

I used to have so much anxiety, be really indecisive about things, get incredibly frustrated when things didn't go the way I wanted to (and lets face it, when does life ever go exactly the way you want it?). And honestly, I was quite miserable to be around.

I got very serious about sorting out my knowledge about exchanges in my thirties, and it has made such a difference!!

poconnor,
@poconnor@pkutalk.com avatar

@soheb @pcublogue I agree, a super thread on a topic which can be difficult to discuss.

I’m struggling a bit with higher levels at the moment so it is good to have a reminder on what to look out for.

World you be comfortable with sharing what your levels were when you were struggling with the anxiety please?

poconnor, to random
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Which is your favourite?

I found the photo shoot from the release of my first book.

poconnor, to random
@poconnor@pkutalk.com avatar

I groomed the , it was an adventure

soheb, to random
@soheb@pkutalk.com avatar

Me: I need to go to work tomorrow
🧠: you need to go to work tomorrow
Me: I need to wake up early
🧠: you need to wake up early
Me: so I need sleep now
🧠: so you need sleep now
Me: so I go to bed
🧠: so you go to bed
Me: and sleep
🧠: lmao wouldn’t it be cool to just keep you awake, just in case????

poconnor,
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@soheb I’ve spent the evening going from 0 to 15 in Diablo IV. Thinking this will be in my future…

poconnor,
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@soheb then the obvious solution is to roll a necromancer and get levelling!

poconnor, to random
@poconnor@pkutalk.com avatar

It’s all about Books! 🥳

➡️Join the fundraising push for @NSPKU & support a patient charity🫂 Link in bio

➡️Sale @routledgebooks for
Buy 2 or more and get 2⃣5⃣% off. Includes the series🙏

https://www.routledge.com/search?kw=brain+injury

poconnor, to random
@poconnor@pkutalk.com avatar

Whoop, there have been a few sales which means the NSPKU with new getting some funds.

Please spread the word to help boost sales and support throes amazing patient charity!


Www.PigPen.page/books

poconnor,
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@soheb meanwhile, so pleased that mastodon has an edit button!

soheb, to gaming
@soheb@pkutalk.com avatar

How's everyone's sunday today? 🤔

Me? I've made myself and my dad a cup of coffee, and I'm ready to get back on the Xbox Series X and play some more Inscryption, but first I need to order some more coffee as I'm running out...

poconnor,
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@soheb I was busy down at the PigPen allotment. Just catching up on your Ah-mazing! posts about the book promo. You are exceptional at this marketing thing!
May I use them elsewhere please?

Allotment progress photos. Tomato, courgette, pumpkins, lettuce, fennel & celeriac in. Apple, raspberries, blackcurrants and potatoes going nicely. And hope to put the melon & sweet potatoes in soon

image/jpeg

poconnor,
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@soheb of course, I did not know Matodin had alt text. Thank for letting me know how to do it

poconnor, to random
@poconnor@pkutalk.com avatar

Hey @soheb , you are great at this marketing jazz - am taking notes ! 😆

poconnor, to random
@poconnor@pkutalk.com avatar

50 years ago, the National Society for PKU was set up to help patients and their families with an incredibly restrictive Inherited Metabolic condition.
They have supported countless people over the years.

I’m supporting them this summer by donating 50% of all profits from book sold in to the NSPKU‘s campaign

If you’re even remotely interested in , please pick up this valuable resource & support an amazing charity and everything that they do. Thank you

video/mp4

soheb, (edited ) to random
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Our very own @poconnor has released her latest newsletter out today! You can read it here:

https://mailchi.mp/a0ea72f0e82a/pigpen-newsletter-pku-brain-injury-and-mental-health-9105380?e=c53e4b7d0f

But here is the major news:

🚨 Half of the profits of Living With PKU is going to the NSPKU between June and July!! 🚨

If you have even the slightest of curiosity about , please pick up the book here: https://books2read.com/u/3GWYnd?ref=pigpen.page

Boosts are incredibly welcome and encouraged!!

poconnor,
@poconnor@pkutalk.com avatar

@soheb amazing! Thank you so much . I teally hope to raise some £££ for the NSPKU, they have helped so msny people.

poconnor,
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I just checked, we’ve already sold copies. Whoop, the campaign is underway!

soheb, to random
@soheb@pkutalk.com avatar

Wake up
Make breakfast: low protein toast with two hash browns
Put salt on hash browns
Put pepper on hash browns
Accidentally inhale black pepper
Sneeze on self

Every. Single. Morning.

poconnor,
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@soheb do you toast or fry the hashbrowns?

soheb, (edited ) to random
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Look what came in the post! The NSPKU news and views magazine!! @poconnor

poconnor,
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@soheb huzzah!!

poconnor,
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@soheb yay, that’s the one! Planning a social media blitz start on Thursday - 1st

Figured after everything the NSPKU have done then this was a small way to pay something back 💐💐

poconnor, to animals
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Morning adventure with the

poconnor,
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@soheb we are lucky in that most things come off with a shake.
But yes, she did get a good brush - and needs more still!

But worth it for the smiles

soheb, to random
@soheb@pkutalk.com avatar

Going to be seeing some old friends, and also planning on having some phe exchanges outside.

What are folks tips and tricks for managing phe for foods that you don’t know (e.g. restaurant food)? Mine is skipping either lunch exchanges or both lunch and dinner exchanges to ensure I stay in the green…

poconnor,
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@soheb if it is a picnic, can you tske a smoothie or similar?

poconnor,
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@soheb hoping for sweet potato chips for you

poconnor,
@poconnor@pkutalk.com avatar

@soheb haha, you do need some protein!

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