2-minute video of Dave reading his poem plus a separate text piece by him
Dave who became ill with #CFS at 21 17 years ago, describes what it’s like to live with the condition, the impact on his life & sense of self worth, & how he has built a meaningful life, despite the condition.
“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”
“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”
“There are then the hits to my sense of worth. Often, when my body produces less, I'm seen as worth less. This message is reinforced by
the meagre amounts of finance and research put towards CFS in Australia. It is disheartening when something like the burrowing habits of an animal receives more funding than humans trapped inside their homes by CFS.”
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