chronicpain

https://lemmy.world/pictrs/image/8ac03906-9e56-4d27-9094-1a7e398aa35f.jpeg...

We're in the middle of a plague...

A campaign group will be targeting UK media outlets during global ME Awareness Day – calling out what it calls the corporate media’s systemic “mis-and-disinformation” relating to this chronic illness....

So I was prescribed 15mg MSContin on top of my 4 7.5mg Percocets daily. Oh my God. I had SO MANY SIDE EFFECTS. It made me violently ill. The first week I was actually happy because it worked very well for the pain but the longer I took the more it wrecked me....

Seen it’s been rather quiet here, I figure a new off the wall message might be helpful to break the silence, 😉...

The dishes are piling up. My apartment is a mess. I can’t stand long enough to make a decent meal. My tasks are falling way behind at work. The physical therapy exercises just stopped helping one day. Ibuprofen makes my stomach cramp, pretty sure I have a hernia, or at least it’s warning me it’s close. Weed doesn’t dull...

It's caused backlash among the chronic illness community....

I’m already at a pain mgt clinic but I’ve never seen a doctor there so I decided to checkout another one. So I asked my neurologist to refer me one and I had the appointment with them today....

I really hate chronic pain lol, obviously. Today’s been hard though. Last week I met with a new neuromuscular neurologist and she told me bad news. She disagrees with my previous neurologist on the CIDP diagnoses and thinks that I have an extreme case of small fiber neuropathy....

I’m a newcomer here, but I would like to raise awareness for people who suffer from severe trauma. The nights of little to no sleep. The tears that are wept for something that happened 15 years ago like it just happened to you. Just here to let you know that you’re not alone, and no matter what pain you feel, someone...

I’ve always read mixed things about them and for some reason I always thought they were thousands of dollars. Finally decided to look them up and to my surprise they’re not lol. Don’t ask how I got that in my head....

Flying home for Thanksgiving will be the first time I’ve flown since things got really bad. I’m 26 and I set up wheelchair service for the airport. Never in my life did I think so much could go wrong so fast....

During my apt Wednesday with my neurologist he mentioned starting me on IVIG infusions. He also referred me to a rheumatologist and I thought I had seen him first but I don’t. He wants to get me going ASAP to get my insurance to accept it along with scheduling cause that can take a bit....

Wow. I have never had someone actually truly believe me and give me something I need right away. First off I should say my neurologist is convinced I have CIDP and my reactions from my spinal tap and blood patch 3 months could be a cause to my reaction...

I’m getting an MRI on Sunday to see what damage has been done to my lumbar spine from a blood patch. Long story short, got lumbar puncture, CSF leak, blood patch = lumbar electric shocks + muscles around lumbar cramping + from soles of feet to lumbar spine feeling like I’m being stung by bees + sensation of ants crawling all...

The pain medication shortage needs to be stopped. They are attacking the wrong people to act like they are fighting the ‘opioid epidemic’. I hope everyone has been able to get their filled on time if you are even able to get them since doctors are terrified to prescribe them now a days.

I’m hoping this muscle biopsy will give me some answers. The emg I had showed muscle and nerve not working correctly in my thigh we haven’t found anything that can tell us why and what damage was done during my period of acute inflammation. Hopefully this can give us a hint as to what’s up....

About 2 months ago was when I got my blood patch after my lumbar puncture a week and a half prior....

I believe my chronic pain is all from TMJ and bad posture. When I do exercises to fix my posture I get pain from my TMJ down to really tight pelvis and thighs. So everything in between also. I’ve been stuck trying to figure out what to do to help myself. And of course, my spinal tap came back clean and yet I’m still dealing...

So I posted here after I got my spinal tap a few weeks back and I really wish I never got it. All it has done is cause more issues....

I hurt. I hurt all the the fucking time. My belly hurts. I’m reducing my drinking but it really sucks. The withdrawals suck real bad....

[Chorus]...

I noticed I’m mostly posting in here and would like to know how you all are doing....