tomkindlon,
@tomkindlon@disabled.social avatar

🧵
UK DecodeME launches data access process

https://www.decodeme.org.uk/data-access/

"86% of DecodeME participants consented to sharing their de-identified data with other researchers and 95% of participants consented to being recontacted for new research projects"

@mecfs

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tomkindlon,
@tomkindlon@disabled.social avatar

2/

" is offering data access to other approved researchers until the end of the study in August 2025 in the hope that it will help accelerate research towards possible diagnostic tests and treatments for ME/CFS."


@mecfs

tomkindlon,
@tomkindlon@disabled.social avatar

3/

"All applications will be reviewed by our Data Access Committee and will only be approved if they meet our high standards, are ethical and worthwhile."


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