New insights from the German exercise physiologist on how to pace with ME/CFS (especially in order to avoid viral reactivation through overexertion) (old.reddit.com)
Interesting thread from Reddit....
Article from 2016: Bad science misled millions with chronic fatigue syndrome. Here's how we fought back (www.statnews.com)
A much-touted study recommended therapy and gradually increasing exercise for patients with chronic fatigue syndrome. Problem is, it was based on bad science.
The Nicotine Patch Long COVID, ME/CFS and Fibromyalgia - Health Rising (www.healthrising.org)
I’m actually willing to try this out. The risk seems low enough and I don’t have anything else to do.
Chronic fatigue syndrome is not rare, says new CDC survey. It affects 3.3 million U.S. adults (apnews.com)
Health officials are releasing the first nationally representative estimate of how many U.S. adults have chronic fatigue syndrome: 3.3 million.
News article: Who Has Chronic Fatigue Syndrome in the U.S.? (www.usnews.com)
Women and people with lower incomes are among those more likely to suffer from a debilitating illness that’s gained attention since the COVID-19 pandemic, survey data shows.
CDC Data Brief: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults: United States, 2021–2022 (www.cdc.gov)
National Center for Health Statistics: Data from the National Health Interview Survey...
Trial By Error: Column in Time Magazine Calls for Halt to Biomedical Long Covid Research (virology.ws)
By David Tuller, DrPH. Time magazine recently published an opinion piece that calls for an end to biomedical research for long Covid—based, it seems, on what the authors view as the ME/CFS precedent. The title: “How to End the Futile Blame Game Over Failed Long COVID Research.” Although research still has “a vital...
Online Support Group (Bateman Horne) December 5 @ 1:00 pm - 2:00 pm MST. Free. (batemanhornecenter.org)
Join our support group for pw ME/CFS, FM, Long COVID, and their loved ones. The first 30 minutes are focused on a topic followed by a general discussion.
Brain-regional characteristics and neuroinflammation in ME/CFS patients from neuroimaging: A systematic review and meta-analysis (www.sciencedirect.com)
Highlights...
ME/CFS Research Roadmap Seminar Series - registrations still open (event.roseliassociates.com)
The ME/CFS Research Roadmap webinars are virtual events open to the public during which ME/CFS experts will present current research, knowledge gaps, and future research opportunities for ME/CFS. Register here. The webinar topics include:...
Whitney Dafoe 40th Birthday Fundraiser (www.whitneydafoe.com)
I’m 40 years old! I’m doing another fundraiser for my birthday and I want to help Ronald W. Davis buy some instruments he needs for his lab that will accelerate his research and further unleash his brilliant mind. The fundraiser is live on Spotfund now...
New: Rapamycin Trial for me/cfs — Simmaron Research (www.simmaronresearch.com)
OMF's First Clinical Trial & Active 3x Donation Match! - Open Medicine Foundation (www.omf.ngo)
Buffy already knew about CFS (swg-empire.de)
Hope this crosspost works.
Totally (lemmy.world)
!memes totally gets us.
Documentary makers call for photos (sibylledahrendorf.jimdofree.com)
From their website:...
Petition: Stop the ABC from broadcasting misinformation about ME/CFS (www.change.org)
Change.org, Stop the ABC from broadcasting misinformation about ME/CFS
ME/CFS: Changing the Narrative - Guest Speaker Ed Yong (www.massmecfs.org)
October 28, 1pm-3pm ET on Zoom. Massachusetts CFIDS/ME & FM Association. Will be recorded for later viewing....
Last Chance to Make History - the Huge Decode ME Study is Closing Soon - and it Needs Your Help - Health Rising (www.healthrising.org)
DecodeME is the biggest, grandest ME/CFS study ever. It’s not just that it’s big (25,000 people) that makes it unique – it’s what it’s trying to do. DecodeME is a genome-wide association (GWAS) study that is looking for small changes in genes that may open the window to ME/CFS. We’ve […]
Study: Orthostatic chronotropic incompetence in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) (www.ncbi.nlm.nih.gov)
Orthostatic intolerance (OI) is a core diagnostic criterion in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The majority of ME/CFS patients have no evidence of hypotension or postural orthostatic tachycardia syndrome (POTS) during head-up ...
WASF3: She Wrote To A Scientist About Her Fatigue. It Inspired A Breakthrough. (Washington Post) (archive.ph)
Link to original article here: Washington Post
UK DecodeME study still recruiting participants - needs more! (www.decodeme.org.uk)
Join the ME/CFS Biomedical Partnership to help create the world’s biggest study of causes of ME/CFS.
A Potential Blood Test for Chronic Fatigue Syndrome (ME/CFS)? - Health Rising (www.healthrising.org)
Using a tool called Raman spectroscopy UK researchers state they have gotten closer to producing a long-sought diagnostic biomarker for chronic fatigue syndrome (ME/CFS)
Change.org Petition to Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review (www.change.org)
This petition has been posted on behalf of the committee of the international Science for ME forum:...
Oral Rehydration Solution More Effective than Saline IV at Improving Orthostatic Intolerance - Health Rising (www.healthrising.org)
Oral rehydration solution may provide a cheap, effective and safe way to improve orthostatic intolerance in chronic fatigue syndrome and POTS....
