@tomkindlon@disabled.social
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tomkindlon

@tomkindlon@disabled.social

95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.

With ME/CFS 35 years, severely affected 29 years. Health has deteriorated post Covid (March 2022).

Irish ME/CFS Association* trustee 26 years. 26 publications in peer-reviewed journals.

MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie

This profile is from a federated server and may be incomplete. Browse more on the original instance.

tomkindlon, to cfs
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May 20 press release:

60 Degrees Pharmaceuticals Funds Babesia spp Testing in [ ] Patient Samples in NC [North Carolina, USA] State College of Veterinary Medicine Study

https://www.globenewswire.com/news-release/2024/05/20/2884789/0/en/60-Degrees-Pharmaceuticals-Funds-Babesia-spp-Testing-in-Chronic-Fatigue-Patient-Samples-in-NC-State-College-of-Veterinary-Medicine-Study.html

@mecfs

tomkindlon, to mecfs
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Dutch Brain Bank starts brain donor program for /

Google-translation from Dutch to English,

https://herseninstituut-nl.translate.goog/nieuws/nederlandse-hersenbank-start-hersendonorprogramma-voor-myalgische-encefalomyelitis-chronisch-vermoeidheidssyndroom/?_x_tr_sl=nl&_x_tr_tl=en&_x_tr_hl=en

@mecfs

tomkindlon, to mecfs
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New from UK team:

A systematic review of quantitative EEG findings in #Fibromyalgia, #ChronicFatigueSyndrome and #LongCOVID

Free full text:
https://www.sciencedirect.com/science/article/pii/S1388245724001445

#MEcfs #CFS #PwME @longcovid @mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

BBC Chronic fatigue syndrome: Protestors call for specialist ME services

https://www.bbc.com/news/uk-northern-ireland-69000501

Article about a demonstration for specialist ME services in Northern Ireland. Interviews with Joan McParland, founder of Hope 4 ME and Fibo NI, Rosie Pigeon and Rebecca Logan

@mecfs

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Post-Exertional Mayonnaise ME and the cult-like nature of psychologisation

https://youtu.be/qxQmMopanY0

Description from @s4me update:

“Podcast interview with Eliza Charley. Highly informed and very well articulated discussion of the experiences of medical, societal and self-gaslighting in the context of medically-induced stigma”

@mecfs

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Recording of 13-minute presentation to recent BACME conference
https://youtu.be/UnZ7L905y6M?si=-JnilaSdhzwG-VnC

Features:
Claire Dransfield, Research Manager, Action for ME
Prof Chris Ponting Principal Investigator, DecodeME @cgatist.bsky.social

@mecfs

1/

tomkindlon,
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2/

Includes findings from the questionnaire part of the study showing thousands of pwME report that pacing is helpful, CBT is not helpful & GET causes harm. Chris Ponting also highlighted the valuable contribution of partnership with patients.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

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