I’m told it’s a painkiller used to wean off opiates but not for longterm use because it’s addictive in itself & has side effects.
(Must stop fentanyl. Govt policy.)
Never tried it before hoping I could use it with low dose naltrexone if I wasn’t getting enough pain control. The pain specialist wasn’t sure.
#LDN is one of the few things I haven’t tried & works wonders for some people.
@halcionandon@chronicpain@mecfs@longcovid I take this drug via transdermal patches. The pain-patches are for acute & chronic pain in my crumbling lower-spine. For that they do the job. Don’t help the #MECFS-related pain though. I have been using for several years. Only issue is my skin-sensitivity to adhesives. Doc agreed a rolling 5-day rather than 7-day programme. Rarely get skin-burns now. If I forget to use, after 24-hrs I experience nasty withdrawal symptoms. Hope this helps.
Yes it does help thanks. I haven’t come across anyone who uses them. I have the same issue with adhesives too & don’t know how 1 patch can stay in the same place for a week. Which dose are you on & what kind of side effects do you have if any? How nasty is withdrawal? I’m on fentanyl yet they want to use buprenorphine to get me off it, but if they’re both addictive this doesn’t make much sense.
It’s bizarre how many doctors don’t know #MECFS itself is painful.
I was switched to Butrans patches about a year ago, from my 15mg/day Percocet for my spondyloarthropathy.
I found the 15 mcgm/hr patch was almost the same, but the 20mcgm/hr patch was what I needed.
I have trouble getting it to stay on the skin when I move. You will probably have to experiment with how you put it on. Best placement I found was on the shoulder and under the arm on the ribcage. Both expand/contract very little, so you keep maximum contact if you get it attached right.
I recently added 2mg suboxone films as a supplement for acute issues. The patches are good at bringing pain levels down overall, but do nothing for spikes.
I strongly recommend that as #pwME, one starts on the lowest dose and only increases if necessary, as we tend to be more med-sensitive than the gen pop.
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