Long COVID is more fatiguing for some than late-stage cancer, study finds: ‘Support and understanding is not at the same level’ (fortune.com)
Long COVID—like so many invisible illnesses—is far more impactful than many healthy individuals realize.
Long COVID—like so many invisible illnesses—is far more impactful than many healthy individuals realize.
Designed by a group of ME/CFS researchers and health professionals, the European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) has received funding from the European Cooperation in Science and Technology (COST)—COST ...
A campaign group will be targeting UK media outlets during global ME Awareness Day – calling out what it calls the corporate media’s systemic “mis-and-disinformation” relating to this chronic illness....
The new work, published this week in Nature Communications, affirms that ME/CFS is unquestionably biologically rooted, says Avindra Nath, clinical director of the U.S. National Institute of Neurological Disorders and Stroke, who led the study. It revealed brain activity differences, along with immune and other abnormalities, in...
The ME/CFS Research Roadmap webinars are virtual events open to the public during which ME/CFS experts will present current research, knowledge gaps, and future research opportunities for ME/CFS. Register here. The webinar topics include:...
We have been given the green light for our new scan tracking leukocyte infiltration of the brain. We can now run the first-ever patient! I wanted to share the exciting news - Jarred Younger....
Abstract: Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients with ME/CFS, and the majority of...
We're in the middle of a plague...
Precis (full article in link): Introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) presents substantial challenges in patient care due to its intricate multisystem nature, comorbidities, and global prevalence. The heterogeneity among patient populations, coupled with the absence of FDA-approved diagnostics...
Summary...
The notion that this illness is psychosomatic is having devastating effects, says Guardian columnist George Monbiot...
cross-posted from: swg-empire.de/post/669057...
The study by Eva Untersmayr-Elsenhuber and her team from MedUni Vienna's Center for Pathophysiology, Infectiology and Immunology builds on earlier research on immune disorders and the intestinal barrier function in patients with ME/CFS. It is well known that ME/CFS patients often differ greatly in the clinical manifestations of...
Abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease characterized by profound fatigue, post-exertional malaise (PEM), and neurocognitive dysfunction. Immune dysregulation and gastrointestinal symptoms are commonly observed in ME/CFS patients. Despite affecting approximately 0.89% of the...
In 2019, Professor Ron Davis from America reported that researchers had developed a nanoelectronics test that could detect an impedance in white blood cells taken from people with ME/CFS1....
The 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID aims to raise awareness, clarify misconceptions, promote understanding, and stimulate discussion among healthcare professionals, investigators, policymakers, patients, and community representatives on the clinical manifestations,...
Summary:...
MEAction is thrilled, once again, to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga to provide a 30 minute, virtual very modified movement class on Thursday, Feb 8th at 11am PT/2pm ET/7pm BST that has been crafted specifically for people with ME. The whole class will be lying down and can be done from bed....
Interesting thread from Reddit....
Women and people with lower incomes are among those more likely to suffer from a debilitating illness that’s gained attention since the COVID-19 pandemic, survey data shows.
National Center for Health Statistics: Data from the National Health Interview Survey...
By David Tuller, DrPH. Time magazine recently published an opinion piece that calls for an end to biomedical research for long Covid—based, it seems, on what the authors view as the ME/CFS precedent. The title: “How to End the Futile Blame Game Over Failed Long COVID Research.” Although research still has “a vital...
Join our support group for pw ME/CFS, FM, Long COVID, and their loved ones. The first 30 minutes are focused on a topic followed by a general discussion.
Highlights...
I’m 40 years old! I’m doing another fundraiser for my birthday and I want to help Ronald W. Davis buy some instruments he needs for his lab that will accelerate his research and further unleash his brilliant mind. The fundraiser is live on Spotfund now...