The point of a diagnosis is so I can get the care and accommodations I need.
The reason I’m protective of the diagnosis criteria is not because I’m somehow enamored with the label, it’s because it’s fundamentally a resource allocation problem and you are stealing services that I need to function from me.
The thing is, those resources are directly under threat if autism is something that everybody has. That narrative turns it into an issue of personal coping skills, and not something anybody else should offer help with or accommodations for.
It’s an excuse to tell people who need help to fuck off.
There’s two sides of the coin. One, correct diagnosis “saves” lives, in that it gets true resources to those who need them. Two, appropriating diagnosis to explain social awkwardness or eccentricity does a disservice to true autistics and strains resources.
But it’s hard to get awareness without appropriation.
I won’t say the same but the shrink my parents went to see after 4 years with the one that said ADHD. That first scripted me on Ritalin/etc. Stimulants on and off the whole time. Here’s a high energy kid trying to learn about anything and everything while you are fucking exhausted working slave labor hours in this tyrrany that tricks everyone to call it freedom.
When that don’t slow the most unstoppable energy carrier you’ve ever met and you cut his boost to the natural boost, he crashes like you at 5pm from your morning source of natural blackness. And you’re already feeding him another not-natural N02-like boost making a never ending loop.
So when you say he’s Bipolar type 1 and he grows up enough to kick you out the same way he did to both those pastors and you expect any kind of respect…
…yeah…I’m 40 now. Technically neither were wrong and I now live on SSDI with zero regret. It’s all a trick sham under a hypno-cloud of technically not lies in the way a professor in college might describe the technical function of the storm and weather of Jupiter. All in all it’s a viable lesson even though we know that no one actually knows what’s up with all that yet.
Problem though is that that college professor is a car mechanic, not a real college professor anymore. Anymore because he already been convicted of raping children…three times…maybe more for real though. He used to be a chef when was actually a professor and now he’s just doing that nonsense with kids he met on Craigslist buying help with real study’s they don’t give a fuck about. That and they like drugs for such and of course you can put together the happening there too.
Yep. There is truth. They know nothing. They are studying and trying to know something. When they suggest they know anything, I would take them about as serious as I’ve taken any priest.
but if several or more symptoms aren’t shared, the specific label shouldn’t be shared.
The problem with this is that autism is a multi-dimensional spectrum. Take a guy with very specific, passionate interests, with a lot of attention for detail, who gets burned out with large social gatherings, but apparently doesn’t show signs of being autistic in their communication. Is he allistic? What if he’s just good enough at masking? Take a kid who cannot communicate verbally, who gets overwhelmed with specific sensory stimuli, who makes a fuss whenever he’s taken to the supermarket, but under a well crafted environment for him, he’s perfectly capable of dealing with some household tasks and the school curriculum for a kid his age. Is he not autistic? Take an old man who’s married, has kids, has always held a job, has some friends in the neighbourhood, and has a pretty good mental health; then you find out that he has a really, really large basement exclusively dedicated to miniature trains that he has been building and maintaining since 40 years ago. Would you not suspect that he’s autistic?
I do have a lot of criticisms with autism as a category, mainly that it relies on the subjective assessment of a person identifying self-reported characteristics, situations and challenges, rather than well defined neurological aspects, through a professional who’s knowledge of autism mostly depends on stereotyped categories created by people who, by the nature of their job, mostly deal with ill people (and therefore have trouble to identify a healthy autistic person), who have historically gatekept autistic people (specially if they were women and/or non-white) because they didn’t fit their stereotype, futher poisoning the own category in the process, but autism as a spectrum has a lot of utility to compare living experiences, difficulties and solutions.
Non-rhetorical questions, just to get you to think.
What are symptoms associated with autism? Are there any? Well, stimming is a thing, right? I’m not claiming stimming is universal for autism; but if it’s associated with autism, then that’s a pattern, right? Autism has more stimming than the neurotypical control group?
Is autism mental only, or is it neurological? If it has sensory symptoms (once again not necessarily universally, but as a pattern more than neurotypical/control), that’s neurological, right?
What does “autism is a spectrum” mean? Does it mean autism varies some, or does it mean it varies indefinitely? If it varies some, where does the grouping end? If autism varies indefinitely, why is human =/= autistic?
How do you define autism? What makes an autistic person different from non-autistic people?
If autism is just “having a special mind”, then what’s the difference between autism and other neurodivergencies and statistically-smaller psychologies? ADHD? Mathematical genius/brilliance? Bipolar? Severe intellectual disability?
Remaining sort of neutral with my opinions, I still state that autism must be by definition a mental and/or neurological phenomenon, and that means it has symptoms or criteria of some kind. And if autism doesn’t, then it would not be finite, and that would mean everyone is autistic, and therefore it would be a useless label and “autism” wouldn’t exist.
If you believe that you are neurodivergent, but you don’t share a not-insignificant number of relevant traits with another neurodivergent person, then you wouldn’t share a label. It wouldn’t mean you’re not neurodivergent, it means you should find another label. And if you can’t find one that fits adequately, I encourage you to explore your own symptoms/criteria and create one.
I’m going to try so that my general views are adequately expressed across the whole message. If it looks like I’m being vague at some point, I’ll be likely expanding on that point later.
(…) Well, stimming is a thing, right? I’m not claiming stimming is universal for autism; but if it’s associated with autism, then that’s a pattern, right? Autism has more stimming than the neurotypical control group?
You’re far more likely to find stimming in autistic people than in allistic people, but you may find autistic people whose natural impulse for stimming gets shut down (for various reasons, such as bullying, ABA or trauma), or allistic people who, under certain (usually exceptional) circumstances, stim (such as someone who is more nervous than usual and their feet begin fidgetting).
What are symptoms associated with autism? Are there any? (…)
There are plenty. I’m willing to accept the vast majority of those you’d find in most manuals, but only as conditional indicators, not as the essence of autism itself. I think the stimming example illustrates well why.
Is autism mental only, or is it neurological? If it has sensory symptoms (once again not necessarily universally, but as a pattern more than neurotypical/control), that’s neurological, right?
Everything mental has to be neurological, by definition, at least until we find of mental processes capable of taking place outside of the brain. Perhaps a better way to frame the question would be: is autism something inherent to how some people’s brains work (and therefore strictly biological and genetic), or is it something acquired (and therefore learned, and potentially unlearned)? I think autism, as the diagnosis you’ll find in manuals, is currently troublesome because it mixes a lot of elements that are inherent to the specific brain, and others that are the result of maladaptation. If you go 50 years back to the past, you’ll find that health professionals would commonly see autism as a disease that has to be overcome, or even unlearned, while autistic people in self-advocacy groups today see autism as an inherent condition, with contemporary doctors somewhat leaning towards the latter position.
In my view, at the core of autism there’s neurodivergency (this is, aspects of the brain that function differently), that are usually met with resistance, inadequate adaptations or abuse, which usually has traumatic results, and autism as a diagnosis mixes up all indications of whatever was always inherent to that person’s brain and whatever disorders were inflicted upon them. Monotropism offers an explanation of autism that can be used to understand what is behind the whole spectrum, including both the stereotype of the asocial, isolated genius, the non-verbal, completely dependent kid, and the vast majority of autistic people who aren’t in any of those extremes.
What does “autism is a spectrum” mean? Does it mean autism varies some, or does it mean it varies indefinitely? If it varies some, where does the grouping end? If autism varies indefinitely, why is human =/= autistic?
It means that autism is a multi-dimensional condition that you shouldn’t expect to exist the same way in two random autistic persons. There isn’t a binary or numerical indicator that tells you “this is autism”, the same way you would say: “this person has XY chromosomes, and is therefore genetically male”, or “this person is below the minimum healthy amount of iron in blood, and therefore has an iron deficiency”. If you create an objective, numerical method to decide whether someone is autistic or not, the people who pass it are going to score differently in plenty of areas, so a multi-dimensional graph would express express the results far better than one single number. You will may find that one autistic person may see their results vary somewhat from one point of their life to another.
In the end, whether someone is autistic or not (as currently defined by autism as a diagnosis) is subject to an arbitrary line where the judge says “this is/isn’t autistic enough”. I would be far more comfortable with a non-psychological test that determined how the person’s brain works in relation to that of the average person, but we aren’t going to see that any time soon.
How do you define autism? What makes an autistic person different from non-autistic people?
Already answered, I think
If autism is just “having a special mind”, then what’s the difference between autism and other neurodivergencies and statistically-smaller psychologies? ADHD? Mathematical genius/brilliance? Bipolar? Severe intellectual disability?
As mentioned earlier, I think monotropism explains autism the best, and it defines it as distinct enough than any of those other categories.
Remaining sort of neutral with my opinions, I still state that autism must be by definition a mental and/or neurological phenomenon, and that means it has symptoms or criteria of some kind. And if autism doesn’t, then it would not be finite, and that would mean everyone is autistic, and therefore it would be a useless label and “autism” wouldn’t exist.
This makes sense to me.
If you believe that you are neurodivergent, but you don’t share a not-insignificant number of relevant traits with another neurodivergent person, then you wouldn’t share a label. It wouldn’t mean you’re not neurodivergent, it means you should find another label. And if you can’t find one that fits adequately, I encourage you to explore your own symptoms/criteria and create one.
If this was specifically directed at me, I hope you no longer think I’m a good target for that message lmao. I got an Asperger diagnosis in my teens.
I do like a lot of what you’re saying, but this over here made me raise an eyebrow:
In the end, whether someone is autistic or not (as currently defined by autism as a diagnosis) is subject to an arbitrary line where the judge says “this is/isn’t autistic enough”
So you’re saying that “whether someone is autistic or not is arbitrary, there is no finite criteria,” and “everybody’s a little autistic, some people are just more”?
So you’re saying that “whether someone is autistic or not is arbitrary, there is no finite criteria,” and “everybody’s a little autistic, some people are just more”?
Not really, I’m fine with putting a line somewhere, I’m just acknowledging that such a line isn’t going to be objective, and some people would put it a little further or a little earlier.
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