soheb, to random
@soheb@pkutalk.com avatar

Didn’t do them last week as I had a cold, so didn’t see the point of being scolded for high phe levels which I had no control over.

soheb, to random
@soheb@pkutalk.com avatar

My last blood test results came back at 570 umol/L!

The one before was 801 umol/L, so it’s nice to see such a drastic difference. It came down to a spice I regularly used having quite a significant amount of protein! Once that got cut out, my levels went down.

soheb, to random
@soheb@pkutalk.com avatar
soheb, to random
@soheb@pkutalk.com avatar

Just done the blood spot. Very happy with the blood spot circles!

poconnor, to random
@poconnor@pkutalk.com avatar

TW: blood & needles

Tips for #PKU #BloodSpot

The #sapropterin trial meant daily #tests & I review different lancets & offer tips

TLDR: lancet has big effect on pain & healing as does choosing the site

https://pigpen.page/tips-for-blood-spots/

#LivingWithPKU #LowProtein #AdultPKU #PCU #PKUlife

soheb, to random
@soheb@pkutalk.com avatar

Just got my latest blood result, and it’s 449umol/L!

#pku #lowprotein #Phenylketonuria #bloodspot #bloodspots

soheb, to Health
@soheb@pkutalk.com avatar

New blood spots!

First finger prick didn’t get too much blood out. The second one did the trick.

Given how the second finger (my usual go-to finger) is hurting and the other one feels like nothing happened to, I would say I probably didn’t put the needle close enough to the finger. Oh well.

soheb, to random
@soheb@pkutalk.com avatar

Just done my blood spots for my PKU! The first circle is great, but I eventually loose steam by the end 😂

#pku #phenylketonuria #phenylcetonurie #bloodspots #bloodspot #blood #health #nhs #lowprotein #diet

soheb, to random
@soheb@pkutalk.com avatar

My last bloodspot result came in, and it was 394umol/L!!

I’m so happy and proud of myself for managing to keep my levels down for a whole entire YEAR!! Past me wouldn’t believe such a thing, and yet here I am!! 😁🎉🥳🎊

#bloodspot #pku #phenylketonuria #phenylcetonurie #lowprotein #restricteddiet #health #phenylalanine

soheb,
@soheb@pkutalk.com avatar

Here is my year result of my blood test results. I'm so proud of myself to have consistently kept it below 700umol/L!

#pku #phenylketonuria #phenylcetonurie #lowprotein #bloodspot #health #restricteddiet #phenylalanine

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