soheb, 18 days ago to random

So glad I managed to sneak some of this home from the conference. It is delicious!

I just wish there was pku food delivery or something!

#Phenylketonurie #phenylalanine #phenylketonuria #pku #ClassicPKU

soheb, 5 months ago to random

I really loved watching this presentation given by our very own @pcublogue! It's about his experiences with PKU. Goes to show no matter the language/nationality/culture difference, there are some things we all share the same, and @pcublogue put it brilliantly! Well worth a watch:

https://videos.pkutalk.com/w/343pZ7gFhvhrN39QGAbQmH?subtitle=en

#Phenylketonuria #phenylcetonurie #Phenylalanine #PKU #ClassicPKU #LivingWithPKU #LowProtein #LowProteinDiet

soheb, 6 months ago to random

Has anyone tried the GMPro powder/drink in comparison to the PKU Sphere? What did you think of it?

#PKU #ClassicPKU #LowProtein #LowProteinDiet #Phenylketonuria #Phenylalanine

soheb, 7 months ago to random

Eh... close enough...

#phenylketonuria #PKU #livingWithPKU #ClassicPKU #phenylalanine #phenylcetonurie #phenyketonuria #blood #bloodspot #bloodspots