@win95@lemmy.zip
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win95

@win95@lemmy.zip

not stuart little

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win95,
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I am very grateful for the Lemmy community and specifically the pirates. Wonderful community!

win95,
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Oh my god empress, I fell down that rabbit hole a while back hahaha. I mean I “cracked” the app now with luckypatcher but that’s only locally on my device, I’m not a true hacker even if the boomers I know in real life think I am lol

win95,
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And here I am in the Netherlands, taking trips to the Midwest sometimes and crying everytime because it’s so accessible and the ADA and what not. All from a tourist perspective, which is just… I can get into a restaurant and use the sidewalks.

I am blessed to have a ramp. And now I’m realizing I say blessed when we’re just human beings living our regular human being lives trying to get out of our house. I hope the regression will be a slow one for you and remember: a wheelchair isn’t something to be ashamed about. Ambulatory wheelchair users exist so if you feel like you can profit off of one, so you may take a longer hike in the mountains or whatever, don’t feel ashamed.

win95,
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Yea the fun stuff is that it’s actually manually operated but it straight up blocks at the 6km or the 8,5. The 8,5 is decent enough but even when turned off the wheels feel ‘blocked’ so I can’t do a quick running contest with my husband. Not the wordt but at 6km it’s just average walking speed which means I can’t take a sprint when crossing the road.

Fun fact: it was stuck in 2,5km/h for months before I finally figured out the manufacturer manual because the actual wheelchair company didn’t know how it worked.

win95,
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Or I can just use the setting 1 and setting 2 nu carrying a remote control on a lanyard constantly while there’s an actual app available but nooooo

win95,
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In imagining your shock when I tell you the cost of my entire wheelchair, which is a manual wheelchair with push assistance (like an e-bike).

win95,
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Sure thing: invacare is the company, the wheels are Alber e-motion M25. Their argument is the wheelchair is usable without the add ons, which I not only disagree with but why are these wheels 8k if they have an app only usable by upgrading? The older model is cheaper and doesn’t have an app which works in the same way then.

I am curious if something will get out of this! It’s difficult to explain but there’s so many hoops I have to go through, I literally can’t contact invacare myself. I have city council to grant me an indication of what I need, a company that delivers the stuff to me and does maintainance (but theyre extremely lacking), then there’s a company that imports the invacare stuff and deals with the company that deals with me.

We truly need to get some hard rules down in the Netherlands. I’m tired of it all.

win95,
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300 for a button: very normal.

win95,
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This is the play store link and honestly: wow. You offering to pay is making my head spin. That’s incredibly kind of you. However I truly don’t want to buy it overall since it’s tied to the wheels, which I don’t own, and I might get other wheels in 5 years and then… I can start over. It’s the principal that I get a device with “cruise control” so I can cover more distance on my own but then the cruise control alone costs 100 bucks.

I’m in a country where people assume disabled people are taken care of. Quite the opposite.

win95,
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Capitalism thrives off mobility aids. Anything decent, even a decent backpack, cost an arm and a leg just because it’s made for the cripples. I hate it here lol.

win95,
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And if I pay I still dont own it, that’s the messed up part. I get what you’re saying though and I appreciate your concern, however I’ve been using the bootleg software for years on my other phone without any problems so it should be possible.

win95,
@win95@lemmy.zip avatar
  • pirate media: shows, books
  • bulk buying toiletries / cleaning supplies when there’s a good deal somewhere
  • use this contraption for toothpaste and other toiletries
  • skip lunch often
  • take care of appliances by fully cleaning them often
  • do dishes and laundry at night
  • YouTube the hell out of things that break to figure out a way to fix it myself
  • use a heated blanket during the day to keep the heater on 16 C°
  • cut my own hair with the help of YouTube
win95,
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I’m the Netherlands where everyone and their mom rides bikes and we have bike lanes everywhere, escooters / ebikes / regular scooters all go on the bike lane. It’s less dangerous to go a bit slower than a fast biking person (like a grandma on a regular bike) and just staying on the right, than the dangers on the sidewalk.

win95,
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I also have a measuring tape in my bag! And at my desk. And the couch. And the kitchen. Just because, lol.

I also have a thing for obsessively checking the temperature and humidity in my house, so I have sensors in every room and the balcony!

win95,
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qbittorrent because I love the search engine

win95,
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I find it sad for all the useful information on that website ( which, if you come across, do repost it on a lemmy community! ) and the subreddits dedicated to helping others out. It would be great if we could build that on the fediverse, but I can imagine wanting to reach as many people as possible when you’re helping out veterans for example.

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