"Tin Foil Hat Territory? The Gupta Program, the Lightning Process and the BPS [biopsychosocial] in #LongCovid and ME: How brain retraining therapies intersect with the biopsychosocial model"
"We need to be vigilant and educated to spot this charlatanry. We need therapeutic treatments that actually work and stop gaslighting those with post-acute viral disease."
Unsure how common this is in other #ChronicIllness affecting cognition, but when you have #MyalgicEncephalomyelitis the writing errors you’re almost guaranteed to make are:
Double the same word
or
Exclude it altogether
Or do both!
So frustrating & the sicker you are the worse it gets. You simply can’t see mistakes! Other problems too ofc but I’ve found this is the most common error made by #PwME
It takes forever to draft posts so when those of us on the more severe end of #ME make one it’s really hard. I wish I could explain how tough it is & people understood how much we’re sharing of limited energy supply.
And sometimes you get too sick to read and write at all. Or look at a screen because of sensory overload.
Now it’s worse because of my recent 3rd #Covid infection which both worsens existing symptoms and gives you new ones!
"Das Kranksein hat mich gelehrt, geduldiger zu sein. Ich muss mich mit meiner verinnerlichten Behindertenfeindlichkeit auseinandersetzen und bin dadurch anderen gegenüber mitfühlender. Aber im Allgemeinen ist es durchschlagend negativ: Viele Beziehungen haben darunter stark gelitten, ich habe einen großen Teil meines sozialen Lebens verloren. Als ich krank wurde, war ich erst seit eineinhalb Jahren in Berlin, sodass ich auf keine langfristigen Beziehungen zurückgreifen konnte.