ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

As we approach May 12, ME/CFS International Awareness Day, it's important to remember those with severe ME.

Many of them are so sick that they are on social media either very rarely or not at all 😢

This video from Anil van der Zee, The Prison of ME, explains the agony of severe ME:

https://www.youtube.com/watch?v=yLRateIQdzc

About 12 minutes. Subtitles in multiple languages.

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

Screenshot of the video summary. See the image if you can't read the text.

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

Here's a link to the short thread that Anil posted on Bluesky:

https://bsky.app/profile/anilvanderzee.bsky.social/post/3ks7nbq76ds2d

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

I forgot to tag @mecfs - Oops!

I think editing in a group tag does not work (post is not boosted).

So here's that video link again:

https://www.youtube.com/watch?v=yLRateIQdzc

Please read the rest of the thread for more info - thanks ❤️

ahimsa_pdx, (edited )
@ahimsa_pdx@disabled.social avatar

I realized that once again I completely forgot to spell out the abbreviations ME and ME/CFS.

So, for folks who have never heard of this illness, or who may mistakenly know it as "chronic fatigue" (which is a symptom of many illnesses and is not the same as an ME or ME/CFS diagnosis), here's a link from the website:

"What is ME?"

https://www.meaction.net/learn/what-is-me/

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