maegul, to longcovid
@maegul@hachyderm.io avatar

I'm slowly realising that I probably have some mild

Since having covid (now had it twice since 2022): iron deficiencies, breathing problems, constant asthma, and now a sudden allergy to some foods apparently.

My partner and I have been careful throughout the pandemic but clearly not careful enough at times (twice each) since "opening up".

And though it could be far far worse, I feel pretty violated right now TBH.

@coronavirus
@longcovid

Frieke72,
@Frieke72@mastodon.social avatar

@maegul you might want to look at some of the presentation from when they get published on youtube next weeks. There's lots of info that might help you recognise and give info to take to your doctors
@coronavirus @longcovid

melsdung, to mecfs German
@melsdung@nrw.social avatar

Heute mal wieder im Büro gewesen, wo der soziale Druck - ausgesprochen oder unausgesprochen - auf mich immer am stärksten wirkt. Übertreibe ich nicht vielleicht doch mit der Maskenkonsequenz?

Und dann kommt man nach Hause und liest das. 🤯

"Bis zum Jahr 2033 werden voraussichtlich eine Milliarde Menschen an Long Covid leiden – die meisten davon in den ökonomisch aktiven Altersgruppen."

https://www.manager-magazin.de/lifestyle/long-covid-konferenz-wir-muessen-uns-endlich-eingestehen-wie-gewaltig-dieses-problem-ist-a-4389644b-1795-4acf-bccf-759d6dce1982

simon_michalke, to mecfs German
@simon_michalke@social.diehumanisten.de avatar

"Believe your patients. The vast majority of people don't pretend to be sick. They pretend to be well."

Important words from Pam Bishop

Thank you for the awesome talk!

antiaall3s, to random
@antiaall3s@chaos.social avatar

Some pretty great talks at Day 1, but literally ALL the people giving talks are only active on and most of the discussion happens there?!

I could not go back to that platform for a million moniz, but we do miss out on a lot here.

Switching to Mastodon has been a very isolating experience for me. Almost the entire community is still active on that horrible fascist website. I do find most information here eventually, but second hand.

https://conference.unitetofight2024.world/tweets

antiaall3s,
@antiaall3s@chaos.social avatar

Long Covid Phenotyping as an aid to successful treatments by Dr. Rae Duncan

On why phenotyping the various strains (or combinations thereof) of are the most pressing issue we need to start addressing.

antiaall3s,
@antiaall3s@chaos.social avatar

"The most severely affected - A caregiver's perspective" by Dr. Sabine Hermisson

Starts in 10 minutes!

antiaall3s,
@antiaall3s@chaos.social avatar

Whenever i hear about severe cases of ME/CFS or Long COVID, i realize that i probably have a medium or even mild case. But then again, even such a medium or mild case can be so very debilitating. And all this with the sword of damocles hanging over it, that symtoms could always get worse.

No one wants this horrendous illness. Stop the gaslighting!

We need more ME/CFS Biohackathons.

Frieke72, to mecfs Dutch
@Frieke72@mastodon.social avatar

Had just enough energy to listen in on 3 of the 20minute webinars today. https://unitetofight2024.world/program/
Gives a bit of hope for all patients who are suffering from post acute infection diseases. Really love to see the science growing.🙏

It goes on for another 2hours and tomorrow. You can still join. I think presentations will be available later too
(See birdsite for loads of tweets. The LC/MEcfs community is big there)

#LongCovid #PostCovid #mecfs #uniteToFight2024
@longcovid @LongcovidNieuws

riffreporter, to mecfs German
@riffreporter@mastodon.social avatar

Wenn sich - oder -Erkrankte das Leben nehmen, ist das bisher ein Tabuthema. Doch Studien zeigen eine erhöhte Suizidrate unter Erkrankten. Ein Grund ist ihre Stigmatisierung. Die Konferenz soll Hoffnung machen: @martinruecker https://www.riffreporter.de/de/wissen/suizidrisiko-sterbehilfe-long-covid-mecfs-stigmatisierung

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