They’ve been working on this for years, an opportunity to schism gracefully was offered in advance. In the UK, they’ve allowed individual congregations to decide what can happen in their church building(s), and individual clergy to opt out of officiating.
It doesn’t cost that much because the company are making a hefty profit, of course. And much more profit off it in the US as per usual, the NHS pays considerably less
The deal struck [in 2021] with Novartis Gene Therapies, secures the drug for NHS patients in England at a substantial confidential discount and paves the way for the National Institute for Health and Care Excellence (NICE) to publish draft guidance recommending treatment with Zolgensma.
The terms of the deal mean that some young children that currently fall outside the NICE recommendation criteria will also be eligible to be considered for treatment by a national multidisciplinary clinical team (MDT) made up of the country’s leading experts in the treatment of SMA.
This means as many as 80 babies and young children could potentially benefit from the life-changing gene therapy a year.
But profiteering aside, the number in the final paragraph is your answer. Up to 80 kids in the UK per year, so up to ~400 in the US, ~500 for the EU. It’s not a big market but the cost of drug development doesn’t get cheaper just because the number of cases is small, it gets more difficult and more costly. And there’s more than one drug company chasing the market.
None of that is a defence of Pharma. But it is inevitable under capitalism. Eat the rich etc etc.
That’s a mind-numbingly obvious point which completely ignores the context, which is Pharma justifying their high prices based on the amount they spend on R&D.
The rest of the world gets drugs 2-3x cheaper than the US. Do you imagine they’re selling at a loss to everywhere else?
Trying to keep my very picky eater 3yo healthy as we’re (hopefully) expanding his diet. Right now the only foods I can get him to actually eat are McDonald’s, a specific brand of yogurt, banana bread, some crackers and some bars. Refuses any beverage besides water. (He’s likely on the spectrum.)
Advising a parent to torture a child over food is piss poor advice to start with but when the parent has identified possible autism, you realise you know less than nothing and shut the fuck up.
Let us remember the last time students occupied Columbia University | Omar Barghouti, Tanaquil Jones, and Barbara Ransby (www.theguardian.com)
Worth reading in full but here’s some snippets:...
‘A better church is possible:’ Methodists celebrate as the church embraces the LGBTQ | CNN (edition.cnn.com)
Two newborn twins need a one-dose treatment that would save their lives: Zolgensma, a $2.1M drug. Insurance (also the mother's employer) cut coverage of the drug the day after they were born. (www.wbtv.com)
america is so fucking based man...
What did you get told as a child that you realised was a lie as you got older?
[Serious] Do you know of any processed snack foods with some vitamins?
Trying to keep my very picky eater 3yo healthy as we’re (hopefully) expanding his diet. Right now the only foods I can get him to actually eat are McDonald’s, a specific brand of yogurt, banana bread, some crackers and some bars. Refuses any beverage besides water. (He’s likely on the spectrum.)