I saw my consultant today. I've been on a newly licensed drug called Cenabomate and it's stopped the seizures but the side effects have been pretty full on with fatigue, confusion and so on....
That's awesome!!! I've had some pretty great specialists and some pretty awful ones. I've become a better advocate for myself over the last 5-10 years so I really try to find specialists that are knowledgeable and actually listen.
I'm so glad you have a great specialist you are working with, and I hope the treatment plan works out well for you. Fingers crossed!
California Live’s Danielle Nottingham sits down with actors Tobias Forrest & John Lawson to talk about their new movie “Daruma” and how they want to help changing the casting process.
Hey, I figured it would be good to get a community about epilepsy going here. Whether it takes off or not I don't know, but I guess someone has to start...
I was diagnosed when I was a teenager. I'm now an adult who has tried many, many drugs... I'm currently on a pretty brand new one called Cenabomate which has actually stopped seizures for now but the side effects have prevented me from being able to work or do much so... Yeah.
How's anyone else getting on with their condition?
@HipPriest - welcome! I have epilepsy as a result of a traumatic brain injury I received as a teenager. I've tried a number of medicines, but Keppra is the only one that seems to have the most effect on seizure reduction for me. It really messes with my mood but I know that is to be expected for many as a side effect.
Never heard of Cenabomate until now. I'm glad it is working for your seizures, but it sucks you aren't able to do much because of the side effects. The magazine for epilepsy is quiet, but there are a couple of us hanging around here in the fediverse. :)
Analysis of data from more than 22,000 people with multiple sclerosis helped researchers identify a genetic variant that is associated with the severity of the disease
As a consumer of visual and performing arts, Vergennes artist Keilani Lime is very aware of the way art can be less accessible to people with disabilities, despite the fact that laws like the Americans with Disabilities Act, or ADA, encourage public venues to make themselves as open as possible to people with physical...
For months, the City of Buffalo has been dealing with stolen parking meters, and some of the meters taken are impacting one community in Western New York.
Yeah, I think it's a spot that only disabled people can use but have to pay to use. I also think it's just as curious that the article does not describe any kind of temporary action. So if the spot no longer has a meter, it can't be used? Does this mean that disabled people will have to park further away to use an existing meter not meant for disabled people? Why not allow people to use their placards as proof to at least be able to utilize the spots.
All the articles I found for this were pretty poor and left much to be answered.
The fashion influencer and disability advocate uses her platform to dismantle ableism and create a more inclusive future for those with disabilities. She says, “Until you put your foot down — or your wheel down — people aren’t going to accept that if we have the appropriate accommodations, if we are treated as equals,...
I assume you mean the sound that appears at 1:04 and will repeat during later bars. Yes, that is via electronic keyboard and specific "soundfont" or "tone". Everything in this song was either done with an electronic/midi keyboard or a live guitar. No samples from other songs were used.
Guitar does come in at :03. I think maybe that's what you're talking about...although piano is present throughout too. I've not really uploaded a video to Youtube before (so I hope this works)...but I deconstructed the song so you can kinda see the different parts in my workstation. Link below.
I tried something ^^ Lo-fi (lemmy.world)
Lo-fi balcony - Like it or not ;-)...
Having a good consultant makes such a difference....
I saw my consultant today. I've been on a newly licensed drug called Cenabomate and it's stopped the seizures but the side effects have been pretty full on with fatigue, confusion and so on....
Wheelchair-Using Teachers Give the Next Generation a More Accurate View of Disability (newmobility.com)
Wheelchair-using teachers talk about the challenges and rewards of the profession.
Advocates reflect on their week on Capitol Hill for #ROCH23 (unitedspinal.org)
United Spinal members spent the week at the Capitol advocating for disability rights.
Family questions accessibility protocol for disabled travelers after son was turned away from flight (www.wkbw.com)
Family questions accessibility protocol for disabled travelers after son was turned away from flight
Meet the actors with disabilities starring in a film not about disability (www.nbclosangeles.com)
California Live’s Danielle Nottingham sits down with actors Tobias Forrest & John Lawson to talk about their new movie “Daruma” and how they want to help changing the casting process.
Unpaid carers: 'I had to choose to care for my husband or my sister' (www.bbc.co.uk)
Miriam Murray says greater support is needed for unpaid carers in Northern Ireland.
Stargazer (smogbotten.bandcamp.com)
A piece written for my friend Mark, who took his own life after a battle with addiction, about star gazing atop Tilting Rock in the California hills.
Woman who couldn't read at 16 to graduate with degree (www.bbc.co.uk)
Chloe McRoberts will graduate with first class honours 10 years after she left school with no qualifications.
Genetic marker discovered for the severity of multiple sclerosis (www.newscientist.com)
Analysis of data from more than 22,000 people with multiple sclerosis helped researchers identify a genetic variant that is associated with the severity of the disease
Vergennes artist advocates for more access - Addison Independent (www.addisonindependent.com)
As a consumer of visual and performing arts, Vergennes artist Keilani Lime is very aware of the way art can be less accessible to people with disabilities, despite the fact that laws like the Americans with Disabilities Act, or ADA, encourage public venues to make themselves as open as possible to people with physical...
Thefts of parking meters has impact on people living with disabilities (www.wkbw.com)
For months, the City of Buffalo has been dealing with stolen parking meters, and some of the meters taken are impacting one community in Western New York.
Contigo (prod by. Mactagger) - A.Ramirez (youtu.be)
Here's something I did with rapper A.Ramirez. I provided the instrumental, he provided the flow. Fun collab!
Fashion influencer changing peoples’ perceptions of disability one post at a time (www.intheknow.com)
The fashion influencer and disability advocate uses her platform to dismantle ableism and create a more inclusive future for those with disabilities. She says, “Until you put your foot down — or your wheel down — people aren’t going to accept that if we have the appropriate accommodations, if we are treated as equals,...
Utah officials respond to criticism over long-term care facilities' conditions and oversight (www.axios.com)
State health officials say they plan to "own the challenge before us."
Special Olympics gold medallist Bleddyn Gibbs given hero's return (www.bbc.co.uk)
Community welcomes home powerlifter Bleddyn Gibbs who won four gold medals at the Special Olympics.
Winters.Tail - Disabled Pup Masters the Stairs! (www.tiktok.com)
Stair practice 🤣 #cerrebellarhypoplasiadogs #bordercollie #specialneedsdog #cutedog #bordercolliesoftiktok #dogsoftiktok #dog #doggolove #dogs #doggosoftiktok #neurologicalcondition #ataxiadogs #foryou #funnydog #happydog #happydance #fyp #doggos #doglove
Something I Made (soundcloud.com)
I'm not really working on anything at the moment, too tired for recording...but this is something I made not too long ago.