You can also print the document (8 pages) to bring to your next appointment. I've given it to several doctors - and so has my husband, who does not have ME/CFS!
Sharing information about the Mayo ME/CFS document (Diagnosis and Management of ME/CFS) - and the associated CME (Continuing Medical Education) - is a great way to immediately improve patient care for people with ME/CFS.
Remember, roughly half of Long Covid patients meet the ME/CFS diagnostic criteria.
Need help crafting an email to send to your doctor? Here's a template:
You can also print the Mayo Proceedings document (8 pages) and bring it to your next doctor appointment. I gave a copy to my cardiologist. I know he read it because he referred to it in my chart notes! 😁
"We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat ME by educating medical providers across our nation’s hospital systems and medical schools about myalgic encephalomyelitis (ME)."
If you can, tell your doctor(s) about the Mayo CME (continuing medical education) for ME/CFS. There's an email template available that has a link to the CME:
"… we are asking the community to submit a quick video recording sharing how long it took to receive a ME diagnosis, to be featured during the campaign week.
This recording will highlight why there is a need for more medical providers to be educated about ME…"
Full email includes script suggestions & other details:
"Teach ME Treat ME will be here in the next few weeks! While many of you are preparing to host medical education events, we know that thousands of you will be participating from home!
We are beyond excited to share the Show Up From Home Toolkit! This toolkit lays out an array of ways you can take action from home based on your energy level."
"We are less than a month away from launching #MillionsMissing 2024, and we are thrilled at the success we’re already seeing with the campaign!
We know the impact of #TeachMETreatME will be HUGE with thousands more clinicians across the country being educated on how to diagnose and treat the ME. Some of these clinicians will become the specialists we so desperately need."
Jaime Seltzer posted a thread about #TeachMeTreatME on Bluesky:
"The Teach ME Treat ME campaign is turning out to be an incredibly successful campaign for Millions Missing this year! Local and state groups are doing in-person medical education events; #MEAction is also engaging in longer-term partnerships to create products to transform ME/CFS care. (1/6)"
"Millions Missing 2024 is off to a great start! We are so thrilled that Teach ME, Treat ME is resonating with our community. Over 100 people attended our kickoff session last month …"
Interested in signing up to host an event? Or volunteer with a team? Sign up here:
"We are thrilled to announce our vision for #MillionsMissing 2024!
This year, we are launching a national campaign to educate hospital systems and medical schools about ME/CFS by encouraging medical schools to Teach ME, and major hospitals to Treat ME
Our goal is to hold in-person events at these institutions the week of May 3 to May 12 …
WE NEED YOU to help pull off a campaign at this scale!"