maloki,

Anyone got experience with doing physiotherapy for issues they have while also having ME/CFS? (I guess long covid can apply).

I don't mean physiotherapy for ME, I know the fucking pace stuff is bollocks, obviously.

But often with physiotherapy you need to keep building up your ability and strength, and I'm worried about how to balance it with not being supposed to go over certain levels of exertion!

@mecfs

liv,
liv avatar

@maloki yes, with some success. It's important to have a physiotherapist who has a basic understanding of what ME is, and isn't expecting to push/"motivate" you.

radicalresilience,
@radicalresilience@todon.nl avatar

@maloki @mecfs we had limited experience so far. the Physio didnt know much about ME beforehand but educated himself. basically did careful massage.

We did find this Website with some Resources that could be Shared with a Physio which seemed quite good:

www.physiosforme.com/resources

robotistry,
@robotistry@sciencemastodon.com avatar

@maloki @mecfs If you increment very slowly (for example, add less than 10% once every two weeks), you'll be able to identify when a new exercise or new intensity is pushing you past your current baseline and making you worse. That's a sign to stop or back off for a while.

For me there are certain types of exercise that make things worse as well as upper limits on what I can do in a day.

GwenfarsGarden,

@maloki @mecfs I've had some experience with this & I do daily stretches they gave me which have helped. Happy to chat about it on Signal if you like.

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