halcionandon, 2 months ago to random

Woke with fever. No more god plz
😭

halcionandon, 4 months ago to longcovid

#MEAwarenessHour
More #PEM awaits me over the next who knows how long. It never gets easier.
It’s never predictable anymore. The #RollingPEM I’ve developed as a result of so much overexertion during the last few years has made it into pain that I’m used to but never stop fearing.

@mecfs
@longcovid
@dysautonomia

halcionandon, 5 months ago to mecfs

#Boost please

GPs in clinics waiting for me to:

1. Go into aged care (I’m not aged.)
2. To see a GP (Who works in their clinic.)
3. Because I don’t fit their business model. (They won’t visit or Telehealth me even if I see them.)

Someone help me! 😭

❤️🔄💬

@mecfs
@chronicpain @chronicillness
#PwME #MEAwarenesshour #MECFS #ChronicPain
#ChronicIllness #PwLC

halcionandon, 5 months ago to mecfs

#Boost please

GPs in clinics waiting for me to:

1. Go into aged care.
2. To see a GP (Who works in their clinic.)
3. Because I don’t fit their business model. (They won’t visit or Telehealth me even if I see them.)

Someone help me! 😭

❤️🔄💬

@mecfs
@chronicpain @chronicillness
#PwME #MEAwarenesshour #MECFS #ChronicPain
#ChronicIllness #PwLC

halcionandon, 6 months ago to mecfs

NOBODY WILL HELP ME.

WHAT DO DOCTORS WANT TO HEAR?
WHAT ARE THE MAGIC WORDS YOU WANT TO HEAR?

I’M BEING LEFT TO ROT.

HELP ME. 😭

#MEAwarenessHour
#PWME #MECFS #ChronicIllness
#NEISVoid #Spoonie #Disability #MedMastodon #ChronicPain #Endometriosis #LongCovid

@mecfs
@chronicpain
@chronicillness
@endometriosis
@medmastodon
@longcovid

halcionandon, 6 months ago to mecfs

NOBODY WILL HELP ME.

WHAT DO DOCTORS WANT TO HEAR?
WHAT ARE THE MAGIC WORDS YOU WANT TO HEAR?

I’M BEING LEFT TO ROT.

HELP ME. 😭

#MEAwarenessHour
#PWME #MECFS #ChronicIllness
#NEISVoid #Spoonie #Disability #MedMastodon #ChronicPain #Endometriosis #LongCovid

@mecfs
@chronicpain
@chronicillness
@endometriosis
@medmastodon
@longcovid

tomkindlon, 8 months ago to mecfs

#VladsMEdiary Ep 148

Let's talk dynamic disability.

#MEawarenesshour #LongCovid

Vlad Vexler:
From: https://twitter.com/vladvexler/status/1453428887548047367

If people know of any of Vlad's other social media channels where he talks about ME, #chronicillness etc., please let me know.

I know he has a very popular YouTube channel on Russian politics but that's not particularly relevant for those who might be interested in this video.

@mecfs @longcovid @chronicillness
@spoonies
@disability
#MEcfs #CFS #PwME #MyalgicE

video/mp4