halcionandon

halcionandon, 11 days ago to chronicillness

Please boost.

Seems I’m famous (and real!) and desperate enough to go to the media for help.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

#PwME #LongCovid #Hypothyroidism #ChronicIlness #Neisvoid #Abuse #Housing

@mecfs
@chronicillness
@longcovid
@neisvoid
@disability
@disabilityjustice
@longcovidaus
@hypothyroidism

halcionandon, 16 days ago to disabled

How can I get people to consider me as a #housemate? What can I do?

People will live with strangers who advertise on Gumtree but I’m too…#disabled? I not going to kill your pets or steal anything.

🤷‍♀️

@disability
@disabilityjustice
@chronicillness
@nostupidquestions

halcionandon, 20 days ago to cardiology

Anybody know what this means or how urgent it is?

I was too sick to do a #cardiology appointment so the #HolterMonitor they sent is still in the bag, just get it back to them when I’m able.

Then I get this message an hour ago:

“Our Blood Pressure and Holter monitor has been with you since 13th of March 2024.

We now require you to return it to us urgently to avoid any damage to the internal clock.”

Whaaattt? Nobody told me! I need help to send it back.

@medmastodon
@chronicillness

halcionandon, 23 days ago to disabled

#Boost plz Situation terrible. 😔

#Disabled suffering #abuse #neglect. Food withheld, basic needs ignored.

If you can offer a room & be a #carer please help. Ask everyone you know. Boost until someone sees.

Can pay carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week. Can go halves in rent too, depending on your needs

Don’t give up on me I can’t survive here.

In #Melbourne, #Australia

#housing #MutualAid

@disabilityjustice @disability @chronicillness

halcionandon, 28 days ago to australia

Can people PLEASE help me contact #churches/ #priests/places of worship/ community groups & ask if they can help me find somewhere to live.

Don’t have to be in #Australia. Search for help in #Melbourne area. Search the #fediverse. Anywhere.

Ask your place of #worship if you have one.🙏

None of the orgs I‘ve been referred to help people with #ChronicIllness or #disability
(Orange Door, Safe Steps I’ve tried them all.)

I cannot live like this anymore.

@chronicillness @mutualaid
@disability

halcionandon, 1 month ago to melbourne

I may need to go to hospital and remember being driven back from hospital on other occasions. Does anyone know what these circumstances involve? I can’t remember.
I am sure this happened in the past. Was it ambulance transport?

Local hospitals are saying no they don’t do that so wondering how the eff to get home when can’t stand or sit up long without passing out.
#Melbourne #Australia

#POTS #Dyautonomia #PwME #MECFS #NEISvoid

@mecfs
@neisvoid
@pwme
@chronicillness
@multipledisabilities

halcionandon, 1 month ago to melbourne

Help me please 🙏 Need somewhere else to live. Being #abused/#neglected denied help.

#Melbourne #Australia

#MECFS #pwME #ChronicIllness #Disability #NEISVoid
#MutualAid #Housing #LongCovid
#Hypothyroidism #Dysautonomia

@disabilityjustice @disability
@mecfs @mutualaid @longcovid
@neisvoid @chronicillness @socialwork @socialworkers @hypothyroidism @dysautonomia

halcionandon, 1 month ago to melbourne

#Boost plz Situation terrible. 😔

If anyone wants to take me in & be my #carer you’re welcome to help.

It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances.

In #Melbourne, #Australia

#housing #Abuse #MutualAid

@disabilityjustice @disability @chronicillness @mecfs @mutualaid

halcionandon, 1 month ago to mecfs

Guys what do I treat #Covid with? How do I get #Paxlovid? Does it work? This is a 3rd time infection but because of heavy brain fog I can’t remember the treatments or supplements used!😩

Already got #LongCovid!

Help please.

In Australia for Paxlovid reference. Most things closed today (Good Friday).

#ChronicIlness #Neisvoid
#MECFS #pwlc #Pwme

@longcovid
@mecfs
@neisvoid
@chronicillness
@multipledisabilities

halcionandon, 1 month ago to random

Woke with fever. No more god plz
😭

halcionandon, 2 months ago to melbourne

#boost plz Situation terrible. 😔

If anyone wants to take me in & be my #carer you’re welcome to help.

It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances.

In #Melbourne, #Australia

#housing #Abuse #MutualAid

@disabilityjustice @disability @chronicillness @mecfs
@mutualaid

halcionandon, 2 months ago to longcovid

It’s #LongCovidAwarenessDay on the 15th of March and I think I’ll be too sick to participate in anything because I have… #LongCovid

@longcovid

halcionandon, 2 months ago to melbourne

If I knew another person with severe chronic illness who lived nearby that would be quite excellent.

Where are they hiding?

#Melbourne #Australia

@chronicillness
@multipledisabilities

halcionandon, 2 months ago to mecfs

3rd March 2002 - RIP Anna.
You deserved a lot better.

#MyalgicEncephalomyelitis #Anniversary

@mecfs

halcionandon, 2 months ago to melbourne

My #abusers are evil. I have to give up appts I’ve waited 12-18 months for & my birthday bc they’re going to make this environment even worse by adding another abuser so I’ll be in sensory overload #abuse/ #neglect hell.

I’ll be lucky to get a cupcake.

I can’t survive this again. Stuffed in a dark room forgotten & getting scraps.

I need somewhere else to live.

Help me 😭

In #Melbourne, #Australia.

#housing
@mecfs
@multipledisabilities
@chronicillness
@dysautonomia
@disabilityjustice

halcionandon, 2 months ago to dysautonomia

The sleep after after dragging yourself through rolling PEM.

Everything is terrible.

And still got to dream more of this and feel more pain to come out the other side somewhat alive.

@longcovid
@mecfs
@dysautonomia

halcionandon, 2 months ago to random

My part time advocate quit. Only had some help for 3 months then she went on 2 months leave and now tells me she isn’t coming back because I’m too much. So that’s nice. 😩 I’m so tired.

halcionandon, 3 months ago to disabled

Why do people assume that families of #disabled people are nice?

Just automatically assume no questions.

Why?

@multipledisabilities
@disability
@chronicillness

halcionandon, 3 months ago to chronicillness

#Abusers are #abusing.

I am so weak and hungry cannot think.

I tried so hard to get out of here but I can’t get away. I tried so hard be they worse when I am very sick and can’t fight back. 😭 They promised to help during tough week. Instead screamed at denied rest and food.

I’ll be dead by year is out if this continues.

@disabilityjustice @disability
@chronicillness
@mecfs

halcionandon, 1 year ago to disabled

If you have any spare change and want to help me, a woman #disabled by serious #ChronicIllness finally escape the #abuse (#neglect, #manipulation, #CoersiveControl, #PsychologicalViolence, some #PhysicalViolence and threats of worse) I’ve been subjected to for over 10 years:

https://buymeacoffee.com/Halcionandon
or
https://www.beem.com.au (free and anonymous)
username: @halcionandon

Give me hope that this #NewYear will be different. I need it to be.

#Boost please 🙏 Thank you.

@MutualAid @mutual_aid @mutual_aid #MutualAid #MutualAidRequest #NEISvoid #DisabledCrowdfunding #Spoonie #SevereME #pwME #MECFS #LongCovid #Trauma #NarcissisticAbuse