@ClairTheGinger@pkutalk.com avatar

ClairTheGinger

@ClairTheGinger@pkutalk.com

Ginger #PKU Adult & now Mumma. She/Her.

Passions include films, ice cream, tea and cats.

Galen Medical Nutritionโ€™s Blogger.๐Ÿ‘ฉโ€๐Ÿ’ป๐Ÿ“

This profile is from a federated server and may be incomplete. Browse more on the original instance.

soheb, to random Czech
@soheb@pkutalk.com avatar

A photo of what was at last nights ESPKU dinner.

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb love how someone else is also taking a photo, definitely one of the best things about the conference ๐Ÿ˜‚๐Ÿ’–

ClairTheGinger, to random
@ClairTheGinger@pkutalk.com avatar

Going to try to make more of an effort to post here!
I'll start with my average food day now I'm on 25 exchanges.
Breakfast: 160g Koko yog with 66g of Frosties
Total exchanges: 4

ClairTheGinger, to random
@ClairTheGinger@pkutalk.com avatar

Haven't updated this in a while, I'm 34 weeks pregnant and currently on 25 exchanges. Life is pretty crazy rn ๐Ÿ˜‚

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb baby needs protein ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

ClairTheGinger, to random
@ClairTheGinger@pkutalk.com avatar

Black decaf coffee to start my morning!
Oh BTW people of Mastodon, I'm also pregnant ๐Ÿ˜‚๐Ÿ’•๐Ÿซ„

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb I have a coffee machine and ground coffee, I mainly wanted the coffee machine for the milk steamer, as all of the prepackaged coffee pods have milk already in them, also steamed milk just hits differently. ๐Ÿ‘Œ
Decaf is for the baby, I've got a list of things for Chris to buy me as soon as I've given birth and monster energy drink is up there ๐Ÿ˜‚๐Ÿ˜‚

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb I wouldn't quite go that far, still haven't even looked into birthing plan yet ๐Ÿ˜‚๐Ÿ˜‚ saw the word "forceps" in a book and threw it away ๐Ÿคฃ :meow_sweat:

ClairTheGinger, to random
@ClairTheGinger@pkutalk.com avatar

I don't mean to brag, but also, check out my blood spots ๐Ÿ˜๐Ÿ˜

pcublogue, to music French
@pcublogue@pkutalk.com avatar

๐ŸŽถ Squirrels just want to have fun! ๐ŸŽถ

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb @pcublogue another one bites the squirrel, tornado of squirrels, total eclipse of the squirrel, Squirrel hall days, uptown squirrel, bark at the squirrel, can I play with squirrels?

soheb, to Steamdeck
@soheb@pkutalk.com avatar

Got San Andreas on my ๐Ÿ˜ @ClairTheGinger

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb goddamn my productivity would be 0 just doing taxi missions non stop.

soheb, to random
@soheb@pkutalk.com avatar

@Louby3107 Hello! Welcome to PKU Talk! ๐Ÿ˜ƒ

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb @Louby3107 agreed 100% with Soheb, the diet is bloody hard we've all gone off it at one point or another, the more we can be open about it the more we can be relastic to the next generation so they know what to expect!! All is welcome here, on diet, off diet, somewhere in the middle, we're all on our own individual pku journeys ๐Ÿ––

soheb, to random
@soheb@pkutalk.com avatar

A question to the PKU community:

What would you say to parents who have just discovered that their child has PKU?

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb contact first!! They have experts that can help answer all and any questions. Do NOT Google PKU. doesn't mean a limited and boring life! With proper diet control, they can live their fullest life like anyone else.

skat, to random Czech

Hi everyone,
Iยดm thinking about visit ES PKU meeting in Birminghamm this year. Would you recomend me some places to visit there?

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb @skat @poconnor @Chloeormerod @Flame1881 if you're a fan of mental there's loads of places to visit music related like pubs that black sabbath used to play in before they got big and HMV is huge and has a history of acts performaning!

soheb, (edited ) to random
@soheb@pkutalk.com avatar

We've been getting a little bit of growth (especially for such a niche community!) so I figured I might as well shout out everyone who has made it here so far, so you can say hi! A ๐Ÿงต

The one and only @pcublogue - he has been with me with the start. Super friendly and incredibly awesome dude! His blogs are definitely worth a read:

https://www.phenylcetonurie.com/

@poconnor - our very own PKU writer, and owner of a very very fluffy dog!

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb not sure how to take the brutally honest ๐Ÿ˜‚ I hope that's a good thing! I know I don't mince my words ๐Ÿค
Thank you my lovely ๐Ÿ’•

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb "just eat a banana" ๐Ÿ˜‚

ClairTheGinger, to random
@ClairTheGinger@pkutalk.com avatar

Made myself an Iced Brown sugar 'oat' shaken espresso!
Perfect for a sunny Friday ๐ŸŒž
(I used Taranis milk, completely free of protein)

ClairTheGinger, to random
@ClairTheGinger@pkutalk.com avatar

Cosmic says good morning ๐Ÿ’•

ClairTheGinger, to random
@ClairTheGinger@pkutalk.com avatar

My black cat Cosmic and my husband, Chris ๐Ÿ’•

Couple, female in front with longish ginger and blue hair and full fringe in black and white dogtooth patten dress. Male behind with strawberry blonde long hair and glasses.

ClairTheGinger, to ADHD
@ClairTheGinger@pkutalk.com avatar

Hello All!

I am Clair, 29 (nearly the big 3-0!) I have classical PKU.
My hobbies include reading, posting pictures of my black cat, Cosmic and playing xbox for too long ignoring all my basic bodily needs.

Recently diagnosed with

I attempt to cook and bake friendly foods and I share any recipes I do perfect on my Instagram page. Ginger_PKU_Goddess.
Feel free to also add me there!

Open to all and any discussions regarding PKU, I hope to pass on the lessons I've learnt to others.

soheb, to random
@soheb@pkutalk.com avatar

A good friend of mine, Clair, has written a blog post about the pros and cons of working from home with PKU. You can check it out here:

https://galenmedicalnutrition.com/blog/working-from-home-with-pku

Quite interesting a lot of the pros are trying to avoid social situations where one would make things awkward or inconvenient by explaining PKU rather than just rolling with it.

Also, I'm so with her on the selfishly making tea things!

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb It is I! The writer of the blog :catjam:

soheb, (edited ) to random
@soheb@pkutalk.com avatar

I can't stop asking to give me recipes, they are so bad! ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ

https://chat.openai.com/share/4a4b1d6c-5884-480e-a198-603da8963b39

ClairTheGinger,
@ClairTheGinger@pkutalk.com avatar

@soheb can share this beautiful meme I made

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