"#WorldMEDay raises awareness of devastating symptom impacting millions post-COVID: 22 organizations from around the world unite to promote awareness of ME — the disease where pushing harder can make you sicker"
Nice to see this from the prestigious US CDC is again recognising ME/CFS International Awareness Day with its own page & this which I think is a new initiative for them:
"On May 12, 2023, CDC will “light up” its Atlanta campus in blue in recognition of ME/CFS International Awareness Day" https://cdc.gov/me-cfs/resources/awarenessday.html
The page was also linked in the weekly email update from the CDC which also tweeted about the day
Ruth Flood @roothflud contacted the Sligo Champion as did we in advance of the Dr Weir talks.
This led to this piece in this week's paper.
Also one of our members, Teresa, has been interviewed and should feature in next week's edition.
Thanks very much to her for stepping up to tell her story.
After organising ME/CFS meetings for the @IrishMECFSAssociation since 1996, I attended my first one in person last night! Here I am (in mask) with my mum, Vera, & Dr William Weir.
I can’t give a proper report as I came just for the chat part at the end (which I enjoyed) but a recording will be put on YouTube.
Me having a lie down while waiting for the question-and-answer session of the Irish ME/CFS Association Dublin event to end (I could still hear everything) so I could sit up (mainly with my feet up) for the chat session of the event. That’s one of my wheelchairs.
Dr Weir sent this to us on Sunday and said it might be of interest to the people coming to his talks this week (in Dublin, Cork, Limerick, Galway & Sligo) so people know his background and why he is interested in ME (and #LongCovid).
The #Wexford People group of newspapers would like to interview a local person about their story living with ME/CFS, along with Dr William Weir. Family members such as partners or parents could also be suitable.
We have some tips we could share with anyone about the sort of questions that tend to be asked e.g. how it affects your life, your symptoms, etc.