antdesros, to mecfs
@antdesros@jasette.facil.services avatar

@mecfs
Welcome to the PwMElympics
People with myalgic encephalomyelitis (PwME) perform daily exploits.
Decathlon: working outside home
Climbing: going upstairs
Marathon: walking
Relay Race: taking part to a conversation
Gymnastics: turning in bed
Obstacle course: getting a disability pension
https://www.youtube.com/watch?v=zTXaxN1QObA
Design and illustration by @cmgouin cmgouin.com
aqem.ca

antdesros, to mecfs
@antdesros@jasette.facil.services avatar

@mecfs
Welcome to the PwMElympics
People with myalgic encephalomyelitis (PwME) perform daily exploits.
Decathlon: working outside home
Climbing: going upstairs
Marathon: walking
Relay Race: taking part to a conversation
Gymnastics: turning in bed
Obstacle course: getting a disability pension
https://www.youtube.com/watch?v=zTXaxN1QObA

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
antdesros, to mecfs
@antdesros@jasette.facil.services avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Recording of 21-minute Cape Talk Radio interview this morning Bettie Hough who’s lives with ME & Chair of ME & Long Covid Unite SA & Prof Resia Pretorius

https://www.primediaplus.com/2024/05/11/intense-fatigue-brain-fog-understanding-me-and-the-support-available-in-sa

Some text extracts are also at the link

@mecfs

tomkindlon, to cfs
@tomkindlon@disabled.social avatar
TMiP, to random
@TMiP@mathstodon.xyz avatar

Today is International Women in Maths day, and our @TMiP conference in Aug/Sept has a great speaker lineup including many fantastic - check out the programme at talkingmathsinpublic.uk/programme may12.womeninmaths.org

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Nice to see this from the prestigious US CDC is again recognising ME/CFS International Awareness Day with its own page & this which I think is a new initiative for them:
"On May 12, 2023, CDC will “light up” its Atlanta campus in blue in recognition of ME/CFS International Awareness Day"
https://cdc.gov/me-cfs/resources/awarenessday.html

The page was also linked in the weekly email update from the CDC which also tweeted about the day

@mecfs

ahimsa_pdx, (edited ) to mecfs
@ahimsa_pdx@disabled.social avatar

Update: Speaker list announced! 😁

📣 Millions Missing 2023 - Press conference and art installation

When: May 12, 11 am to 12 pm Pacific Time
Where: Washington Monument, Washington, DC

Art installation is rows of cots with pillowcases sent in by ME/CFS & Long Covid patients.

Press conference will be live-streamed, please RSVP below :blobthanks:

https://www.meaction.net/event/millionsmissing-2023-watch-livestream-of-press-conference/

Learn more about ME/CFS: https://www.meaction.net/learn/what-is-me/

@mecfs

Private
ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@mecfs The Science For ME forum has a thread listing some of the events planned for World ME Day.

https://www.s4me.info/threads/me-awareness-day-week-month-may-2023.31817/

Most are scheduled for Friday, May 12 but some are on different days.

Blue Sunday, a fundraiser, is scheduled for Sunday, May 14.

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses.

Unlike Covid lockdowns, the lockdowns we have dealt with for years due to continue


@mecfs @cfs

Private
ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

In the USA and Body Politic are holding Millions Missing 2023 at the Washington Monument on the National Mall in Washington, DC on May 12th. An art installation and live press conference are planned.

Speaker info coming soon.

RSVP here:

https://www.meaction.net/event/millionsmissing-2023-watch-livestream-of-press-conference/

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

UK and Scotland plan an online photo campaign for Millions Missing

"We want to flood social media with powerful images that show the reality of life with ME and what people are missing, as well as the loss it also means for carers, families, schools and communities, and ask the question ?"

Two photo categories:

  1. Your view with ME

  2. Spaces people with ME are missing from

https://www.meaction.net/2023/04/14/join-the-uk-and-scotlands-digital-campaign-this-millionsmissing/

IrishMECFSAssociation, (edited ) to mecfs

May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by liking and/or retooting this video. This 2017 TED talk features @jenbrea.

https://youtu.be/Fb3yp4uJhq0

@mecfs @cfs

Day #1

IrishMECFSAssociation,

11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day

&

May is #MECFSawarenessmonth

Please help by retooting this 12-minute documentary which features Whitney Dafoe & others
https://youtube.com/watch?v=9_HwOUiImvw

#Day11

#PwME @mecfs @cfs #SevereME #SevereMECFS
#SevereCFS #VerySevereME @SevereME

IrishMECFSAssociation,

12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by retooting this (well-made) video.

(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE

Day

@mecfs @cfs

IrishMECFSAssociation, (edited ) to mecfs

🧵
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by liking and/or retooting this image.

@mecfs @cfs

IrishMECFSAssociation,

11/

May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.

You can help by retooting this image.

Day

@mecfs @cfs

IrishMECFSAssociation, (edited )

12/

May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month)

You can help by retooting this image.

Day 12

@mecfs @cfs

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

From :

"Join the UK and Scotland’s digital campaign this Millions Missing"

"We want to flood social media with powerful images that show the reality of life with ME and what people are missing, as well as the loss it also means for carers, families, schools and communities, and ask the question ?"

Two photo categories:

  1. Your view with ME

  2. Spaces people with ME are missing from

https://www.meaction.net/2023/04/14/join-the-uk-and-scotlands-digital-campaign-this-millionsmissing/

@mecfs

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar
ahimsa_pdx, to longcovid
@ahimsa_pdx@disabled.social avatar

From :

"Million Missing 2023 is 3 weeks away!

Take a look at our Activism From Home Kit & plan how you can join in!

In order to get a greater amplification of these efforts and to get THE MOST press attention for this event, we will need help from those at home."

https://millionsmissing.meaction.net/activism-from-home/

@mecfs @longcovid

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