CindyWeinstein,
@CindyWeinstein@zirk.us avatar

Although I am not a neurologist, I think a lot about the of . I wrote a about my father's -onset 's with , .BruceMiller of 's . It explains where in the the initial assault happens and helps us understand why people can't find the right words and/or garble them and/or repeat them. After many years, I learned that my father had the variant.

wlf_warren,
@wlf_warren@pebble.social avatar
CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@wlf_warren. Thank you!

wlf_warren,
@wlf_warren@pebble.social avatar

@CindyWeinstein > ... there are some here on pebble.social still dealing w/ a family member

CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@wlf_warren. If that includes you, I am so sorry. Sending strength to all who are dealing with this devastation.

wlf_warren,
@wlf_warren@pebble.social avatar

@CindyWeinstein Not now, past yes.
It is hard to watch.
In the beginning (early stages)
My father's self awareness of his own state was heart breaking.
later, I tried to take solace, that he didn't understand or know any better. still.. 🥺🥺

CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@wlf_warren. It's never past, is it? I hear you. . . 💔

wlf_warren,
@wlf_warren@pebble.social avatar

@CindyWeinstein Thank you your concern and outreach. They are getting better at a cure, hopefully in time. The awareness is much better today.

CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@wlf_warren. You are welcome and thank you for sharing. The neurology is moving forward by leaps and bounds (never fast enough), and the help for #caregivers, which was non-existent when my mother was caring for my father, has improved a lot (never enough, of course).

#EndAlz

wlf_warren,
@wlf_warren@pebble.social avatar

@CindyWeinstein When I lived in the West Indies as a young lad with my Grandparents there was a British chap and his wife Bunny. lives near us.

She had a mentality at that time of a child, wore diapers, sweet lady... just no one knew why it happened to people back then. Never forgotten them 👍

CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@wlf_warren. Bunny lives on!

wlf_warren,
@wlf_warren@pebble.social avatar

@CindyWeinstein Bunny Poyser! 💯❤️

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