joenash,
@joenash@hachyderm.io avatar

Hello fediverse, lil cry for help: I’m looking to speak to someone with vitelliform macular dystrophy caused vision loss, so I can ask about their experience with the onset of symptoms. I was diagnosed ~3 years ago and until recently hadn’t experienced symptoms, I believe I now am but would love to chat to others about their experiences. Compulsory masto disclaimer: I’m not looking for advice other than the specific ask above, thank you. Boosts much appreciated 💖

joenash,
@joenash@hachyderm.io avatar

Not to be a dick when I’m asking for help but if you’re going to reply to suggest I add a hashtag, please a) suggest a hashtag that has any toots on it whatsoever and b) has anything to do with the condition in question.

NatureMC, (edited )
@NatureMC@mastodon.online avatar

deleted_by_author

edavies,
@edavies@functional.cafe avatar

@NatureMC @joenash ('th', not 'ht') has more traffic. ⬆️​

NatureMC,
@NatureMC@mastodon.online avatar

deleted_by_author

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  • edavies,
    @edavies@functional.cafe avatar

    @NatureMC @joenash So we both missed an 'h'. Wow. TIL.

    NatureMC,
    @NatureMC@mastodon.online avatar

    deleted_by_author

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  • vik,
    @vik@literatur.social avatar

    @NatureMC
    Not the box of shame, you sit in the bright box of enlightenment 😁 Learning something you didn't know before is reason for joy 🙂 Congratulations!
    @edavies @joenash

    j_g_fitzgerald,
    @j_g_fitzgerald@c.im avatar

    @joenash Hashtag, there you go;

    joenash,
    @joenash@hachyderm.io avatar

    @j_g_fitzgerald as far as I can see (from the Big Hashtag Search), there are no posts on that hashtag. Are you seeing otherwise?

    j_g_fitzgerald,
    @j_g_fitzgerald@c.im avatar

    @joenash No. This is how you get started. Now people can find your messages using that hashtag.

    joenash,
    @joenash@hachyderm.io avatar

    @j_g_fitzgerald right, thanks, that’s not what I’m looking for. Please kindly stop suggesting it

    j_g_fitzgerald,
    @j_g_fitzgerald@c.im avatar

    @joenash I obviously misunderstood your message. I thought you're trying to reach people who might help. Sorry for trying to help.

    j_g_fitzgerald,
    @j_g_fitzgerald@c.im avatar

    @joenash Good luck. I suggest using hashtag for your condition to boost visibility.

    helma,
    @helma@mastodon.social avatar

    deleted_by_author

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  • joenash,
    @joenash@hachyderm.io avatar

    @helma dank je wel, Helma!

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