tomkindlon,
@tomkindlon@disabled.social avatar

🧵

"7 Challenging Daily Decisions When You
Live With Chronic Illness
https://themighty.com/topic/chronic-illness/challenging-daily-decisions-with-chronic-illness/

Here are the 7 headings. The article itself expands on these

  1. Deciding if you’re going to take a shower.
  2. Deciding where to spend and save your spoons.
  3. Deciding how to answer “How are you?”

@chronicillness @spoonies @mecfs
@longcovid

1/

tomkindlon,
@tomkindlon@disabled.social avatar

2/

  1. Deciding how to respond to “I hope you feel better soon!”

  2. Deciding if you’re actually able to do ‘The Thing.’

  3. Deciding how much social interaction you can handle.

  4. Deciding when to ask for help.

@chronicillness @spoonies @mecfs @longcovid

tomkindlon,
@tomkindlon@disabled.social avatar

3/

"Now that I’m living with , I have to put serious consideration into much of what I choose to do throughout the day because it will have an immediate effect on Current Leslie, as well as risk having an impact on Future Leslie."

@chronicillness @spoonies @mecfs @longcovid

tomkindlon,
@tomkindlon@disabled.social avatar

4/

"On the days that I decide I don’t have the recovery time or overall energy to take a shower, I give myself a baby wipe bath (which is just wiping myself down with a bunch of baby wipes), apply dry shampoo to my hair, and throw a little cold water on my face."

@chronicillness @spoonies @mecfs @longcovid

tomkindlon,
@tomkindlon@disabled.social avatar

5/

"Spoon delegation isn’t always about the things you have to get done on your task list. Sometimes it’s about making the decision to put those spoons toward an activity you enjoy for your mental health — even if it means you’re going to be a little smelly — that’s what deodorant and body sprays are for!"

@chronicillness @spoonies @mecfs @longcovid




tomkindlon,
@tomkindlon@disabled.social avatar

6/

"But when those plans involve other people, the stress and guilt felt by having to tell them you don’t feel well enough to participate can be overwhelming."

@chronicillness @spoonies @mecfs @longcovid

dom_mecfs,

@tomkindlon @chronicillness @spoonies @mecfs @longcovid did you ever manage to get immunoglobulin therapy Tom?

tomkindlon,
@tomkindlon@disabled.social avatar

@dom_mecfs @chronicillness @spoonies @mecfs @longcovid No. Never looked for it as would likely be almost impossible to get in Ireland I would imagine.

dom_mecfs,

@tomkindlon @chronicillness @spoonies @mecfs @longcovid definitely is. Some doctors in the UK did it in the nineties I found out today.

maggiemaybe,

@tomkindlon @chronicillness @spoonies @mecfs @longcovid
“I hope you feel better soon” is answered with “Oh that’s sweet, but I won’t. This is life with chronic illness.”

They need to hear it. They need to know that sometimes you get sick and you NEVER get better. Ever.

CableSt,
@CableSt@mastodon.social avatar
  • All
  • Subscribed
  • Moderated
  • Favorites
  • mecfs
  • DreamBathrooms
  • mdbf
  • ethstaker
  • magazineikmin
  • cubers
  • rosin
  • thenastyranch
  • Youngstown
  • osvaldo12
  • slotface
  • khanakhh
  • kavyap
  • InstantRegret
  • Durango
  • JUstTest
  • everett
  • tacticalgear
  • modclub
  • anitta
  • cisconetworking
  • tester
  • ngwrru68w68
  • GTA5RPClips
  • normalnudes
  • megavids
  • Leos
  • provamag3
  • lostlight
  • All magazines