(pay wall)
"Parents of children with #longCovid claim they have been accused of faking or exaggerating their child’s illness, leading to social services’ involvement and... court cases and the threat of the child’s removal from the home."
"For some people, disabling symptoms lead to complete inability to work. In less extreme cases, “work instability,” which is a mismatch between patients’ functional abilities and the demands of their work, can threaten employment if not addressed."
"Children with #LC have a reduced VO2 peak […], abnormal cardiovascular efficiency (VO2/HR% pred), pathological VE/VCO slope […], and abnormally reduced slope of VO2 work" "48% of the LC patients had a suspicious phenotype for pulmonary hypertension."
New research from UK team:
Examining well-being and cognitive function in people with #longCovid and ME/CFS, and age-matched healthy controls: A Case-Case-Control Study
"In this article, we review the evidence surrounding the post-acute sequelae of COVID-19 and the potential benefits of the use of heparin, with a special focus on the treatment of postural orthostatic tachycardia syndrome”
Needs a clean but I'm told it works. Peering inside, no battery leakage and caps look okay - though there's lots of dust. Slight cracks on front cover but otherwise intact.
Prusty Lab, the laboratory and team of ME/CFS researcher Bhupesh Prusty has a new website. Prusty is currently Professor of Science at Rīga Stradiņš University in Latvia.
Dr Barnden and his team at Griffith University & the University of Queensland have recently published new findings showing increased neurochemical levels in the brains of people with ME/CFS & #longCOVID
Hand grip strength, a measure of muscle fatigue, has previously been explored in ME/CFS. A recent study conducted by researchers from Charité – Berlin University of Medicine extended this research to #longCOVID
(US) Solve ME/CFS Initiative has created an automated tool (meant for folks in the USA) https://p2a.co/tE8DZk8 that will contact your Member of Congress & ask them to support a new "home" for "Infection-Associated Chronic Conditions and Illnesses" (IACCIs).
'Beth Pardo is among the people who developed ME/CFS after contracting COVID.' 'Pardo went from running ultramarathons to being unable to leave her bed'
@tomkindlon I'd guess it was much the same with 'Battle Fatigue'. An erroneous inference that a serviceman was tired of fighting. Now, it is labelled Post Traumatic Stress Disorder. Not quite so dismissable, but still not taken as seriously as it should be. #LongCovid being tacked onto #CFS will hopefully see #ME_CFS sufferers getting better, more focused, attention than they have been receiving up to now. I say this with cynical 🤨 because #LC seems to affect male and female equally. @mecfs
"*PEM is post-exertional malaise, also known as post-exertional symptom exacerbation. It is a symptom of ME/CFS and is also found in many people with #longCovid"
"PEM is dangerous. PEM can last hours, days, weeks, months, or a lifetime. Its duration and severity are wildly out of proportion to whatever prompted it. It can result in permanent harm. PEM can take a person who is able to work or look after their children, and make them bedbound. PEM destroys lives."
I think diagnoses like #LC & #MECFS are important for those ill after an infection to help adapt to the impairments, not get worse from pushing/having to push, etc