hannahshouse2, 6 months ago

@brainwane
Thank you so much for all these resources. I am starting this journey with my mother and had no idea where to start. It's too much for me to dig into it tonight but tomorrow for sure. Know that i'm grateful that you did the heavy lifting.

brainwane, 6 months ago

@hannahshouse2 My condolences and sympathies. I wish you well and I wish your mother comfort. Thanks for letting me know your response, and please do pass the link along if you think others might benefit.

iskandarv, 6 months ago

@brainwane That is good timing for me. Thank you for sharing.

brainwane, 6 months ago

@iskandarv I'm glad I can help, and I wish you well as you undertake this.

federicomena, 6 months ago

@brainwane I really appreciate this, Sumana. What a fantastic resource!

brainwane, 6 months ago

@federicomena Thanks, Federico. Hope it helps people.

brainwane, 6 months ago

Researching specific treatments & how to perform at-home procedures

Organ/body donation; donating unused medicine

Palliative care, hospice, insurance/Medicare, & hospice facility eligibility

Delirium & persuasion

Music for comfort

Books & blogs that helped me prepare for this

#eldercare #caregiving #caregiver #caregivers #EndOfLife #healthcare #medicine #PalliativeCare #hospitals #PatientAdvocacy #EstatePlanning #DeathCare #hospice

This was, at times, hard to write. Hope it helps.

[2/n]

unicorndeburgh, 6 months ago

@brainwane

I'm so sorry for your loss.

This compilation is amazing and will be so helpful to people. Thank you.

brainwane, 6 months ago

@unicorndeburgh Thank you. I am grateful to all the people who shared their wisdom so I could learn from it, and am glad to pass some along to pay it forward.

crystalvisits, 6 months ago

@brainwane ooof. Thank you; that's becoming relevant for us, too. Appreciate your hard work, here.

llorenzin, 6 months ago

@brainwane Sumana, I can only imagine. 🫂
This is an incredible resource - with two elderly parents remaining, I'm sure we'll make good use of it someday. Thank you so much for investing the time and effort to share it!

brainwane, 6 months ago

Detailed table of contents (4 posts follow, mute #caregiving):

💔 You HAVE to take care of yourself: what happens if you don't, the minimum you have to do, and checking for emergency levels of stress. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#take-care-self

🗓 Changes to expect in the months, weeks, and days before death: read this free guide. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#take-care-self

☑️ Checklists for before and just after death: a few free lists and workbooks to help you plan things and take care of logistics. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#checklists-before-after-death

[3/n]

brainwane, 6 months ago

📝 Wills, powers of attorney, and advance health care directives: start before you need them, and LegalZoom is fine. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#wills-poa-health-directives

🥔 Easy-to-eat food, and letting your friends help you: MealTrain, deliveries, and what food is easiest. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#food-friend-help

🛐 Hospital chaplains can do a lot: even if you're not Christian, they can connect you to useful people and resources. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#hospital-chaplains

[4/n] #caregiving

brainwane, 6 months ago

📒 Medical notetaking at appointments and the bedside https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#medical-notetaking :

• Be a patient advocate, provide continuity of care, and prevent mistakes; make and bring basic records https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#basic-records

• And keep up during a hospital stay. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#keeping-up-hospital

🧪 Researching specific treatments and how to perform at-home procedures: look up science and instructions by professionals so you can know what's happening and how to troubleshoot. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#research-treatments

[5/n] #caregiving

brainwane, 6 months ago

🫀 Organ and body donation, and donating unused medicine: try to do paperwork before death, and have a Plan B. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#organ-body-donation-meds

🏥 Palliative care, hospice, insurance (including Medicare), and hospice facility eligibility: the doctors are giving you subtext you need to understand. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#palliative-care-hospice

😱 Delirium & persuasion: it's hard to be with someone who's losing connection with reality, but I have some tips. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#delirium-persuasion

[6/n] #caregiving

brainwane, 6 months ago

🎶 Music for comfort: calming playlists can calm agitation, and be solace if you're not there. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#music-comfort

📚 Books and blogs that helped me prepare for this: I recommend some memoirs and how-tos. https://www.harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/#books-blogs

And that's it. Plus the comments, which have some fresh wisdom from others.

[7/n] #caregiving