My husband has ME/CFS, like the Physics Girl. It's an absolutely devastating illness. He was a very active 35 when he was told there's no cure, not even a treatment, and that pain/fatigue was his life now for the rest of his days.
We've been around this long enough to see promising drug/cure/treatment/diagnostic tests come and disappear, month after month, year after year. The influx of funding/awareness linked to Long Covid is incredibly welcome, but many instances are repeats of previous ME/CFS research, so it holds up previous findings but doesnt drive anything forward. There's not been any real progress in the last 2 years, and the funding/focus is waning. I may be jaded, but hopes are low. I also sincerely hope I'm wrong.