@halcionandon@disabled.social
@halcionandon@disabled.social avatar

halcionandon

@halcionandon@disabled.social

I’m severely #disabled by #ChronicIllness.

I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off with #LongCovid. Hi #NEISvoid

Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking patients?)

Need help with #accommodation #NDIS #GP #carer/ #caregiver & navigating the system. LMK!

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halcionandon, to mecfs
@halcionandon@disabled.social avatar

Ok overdone it big by trying to be normal and post/interact.

Will pay in worseened symptoms tomorrow (dreaded #PEM)

Nice talking to you. (The people I managed to get to.)

(Such is life/existence with #SevereME and #ChronicIllness)

@mecfs

halcionandon, to longcovid
@halcionandon@disabled.social avatar

Did anyone with get a ton of rashes you can’t explain?

Nothing gets rid of them.

Plenty of other symptoms but this is one that doctors always blame on allergies.

My hair also got intensely dry to the point where it didn’t need washing for 3 weeks. There was no sebum! I had to oil it & leave it in for a week even after using a very rich conditioning treatment.

My nose would also not stop bleeding.

I’m about 2 months into my second infection. Already have .

@longcovid

halcionandon,
@halcionandon@disabled.social avatar

@PurpleSpeedwell @longcovid
You’re probably right there. I forgot about MCAS.
Another symptom of / Covid - memory loss.

halcionandon,
@halcionandon@disabled.social avatar

@chemoelectric
They don’t itch though. Hives/ urticaria are meant to itch, right?

Someone just reminded me of which is often trigged by so that would explain a lot.

Possibly just getting rashes for the sake of it.

halcionandon, to chronicillness
@halcionandon@disabled.social avatar

It’s really hard having had a . I’m mostly recovered but people expect me to be entirely ‘normal’ bc I don’t look like I had a stroke.

The world is so & I shouldn’t need a dr, etc to explain why I need visual cues to understand speech. I find regular people have this problem too to various extents so why?

Deniers are the worst. Mostly drs (it’s in my medical records!).
Constantly explaining one of the most traumatic times in my life just to access the world.🥺

@chronicillness

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