@halcionandon@disabled.social
@halcionandon@disabled.social avatar

halcionandon

@halcionandon@disabled.social

I’m severely #disabled by #ChronicIllness.

I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off with #LongCovid. Hi #NEISvoid

Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking patients?)

Need help with #accommodation #NDIS #GP #carer/ #caregiver & navigating the system. LMK!

This profile is from a federated server and may be incomplete. Browse more on the original instance.

halcionandon, to mecfs
@halcionandon@disabled.social avatar

Ok overdone it big by trying to be normal and post/interact.

Will pay in worseened symptoms tomorrow (dreaded #PEM)

Nice talking to you. (The people I managed to get to.)

(Such is life/existence with #SevereME and #ChronicIllness)

@mecfs

halcionandon, to longcovid
@halcionandon@disabled.social avatar

Did anyone with get a ton of rashes you can’t explain?

Nothing gets rid of them.

Plenty of other symptoms but this is one that doctors always blame on allergies.

My hair also got intensely dry to the point where it didn’t need washing for 3 weeks. There was no sebum! I had to oil it & leave it in for a week even after using a very rich conditioning treatment.

My nose would also not stop bleeding.

I’m about 2 months into my second infection. Already have .

@longcovid

halcionandon,
@halcionandon@disabled.social avatar

@PurpleSpeedwell @longcovid
You’re probably right there. I forgot about MCAS.
Another symptom of / Covid - memory loss.

halcionandon,
@halcionandon@disabled.social avatar

@chemoelectric
They don’t itch though. Hives/ urticaria are meant to itch, right?

Someone just reminded me of which is often trigged by so that would explain a lot.

Possibly just getting rashes for the sake of it.

halcionandon, to chronicillness
@halcionandon@disabled.social avatar

It’s really hard having had a . I’m mostly recovered but people expect me to be entirely ‘normal’ bc I don’t look like I had a stroke.

The world is so & I shouldn’t need a dr, etc to explain why I need visual cues to understand speech. I find regular people have this problem too to various extents so why?

Deniers are the worst. Mostly drs (it’s in my medical records!).
Constantly explaining one of the most traumatic times in my life just to access the world.🥺

@chronicillness

halcionandon, to chronicillness
@halcionandon@disabled.social avatar

Unsure how common this is in other affecting cognition, but when you have the writing errors you’re almost guaranteed to make are:

  1. Double the same word
    or
  2. Exclude it altogether
    Or do both!

So frustrating & the sicker you are the worse it gets. You simply can’t see mistakes! Other problems too ofc but I’ve found this is the most common error made by

I did both when composing this!

I miss my old brain!
😩

@mecfs @longcovid @chronicillness

halcionandon,
@halcionandon@disabled.social avatar

@mecfs @longcovid @chronicillness

It takes forever to draft posts so when those of us on the more severe end of make one it’s really hard. I wish I could explain how tough it is & people understood how much we’re sharing of limited energy supply.

And sometimes you get too sick to read and write at all. Or look at a screen because of sensory overload.

Now it’s worse because of my recent 3rd infection which both worsens existing symptoms and gives you new ones!

Wear a mask!

halcionandon, to random
@halcionandon@disabled.social avatar

There’s a lot of things I don’t understand, but here’s just one:

killed over a million people in the US and is still going strong.

Why does nobody talk about it?

That’s roughly 1 in 300 people.
You would know at least someone who died of it. Is it mass trauma?

halcionandon, to chronicillness
@halcionandon@disabled.social avatar

This is me:
https://t.co/f1vB5pXoK6

There are help links in the article but to summarise:

My crowdfund: https://www.buymeacoffee.com/halcionandon

Also:
People with Australian bank accounts can use https://www.beem.com.au to pay @halcionandon. Fee free & anonymous.

People helping me is most important. I need a safe place & an #advocate the most. Please consider.🙏

Please #boost & thanks for reading. Help not expected but appreciated.💜

#MutualAidRequest
#MEAwarenessMonth

@mutualaid
@mecfs
@chronicillness

halcionandon,
@halcionandon@disabled.social avatar

@Rob200 @mutualaid @mecfs @chronicillness @disability
Not homeless yet.Trying very hard to avoid that situation. The other living conditions are in the article.

halcionandon, to chronicillness
@halcionandon@disabled.social avatar

Please boost.

Seems I’m famous (and real!) and desperate enough to go to the media for help.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

@mecfs
@chronicillness
@longcovid
@neisvoid
@disability
@disabilityjustice
@longcovidaus
@hypothyroidism

  • All
  • Subscribed
  • Moderated
  • Favorites
  • •
  • JUstTest
  • cisconetworking
  • DreamBathrooms
  • InstantRegret
  • mdbf
  • khanakhh
  • magazineikmin
  • Durango
  • Youngstown
  • slotface
  • rosin
  • everett
  • kavyap
  • Leos
  • megavids
  • ngwrru68w68
  • tacticalgear
  • osvaldo12
  • GTA5RPClips
  • ethstaker
  • thenastyranch
  • cubers
  • anitta
  • tester
  • modclub
  • normalnudes
  • provamag3
  • lostlight
  • All magazines
    •