covid19

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viq,
@viq@hackerspace.pl avatar

https://www.abc.net.au/news/2023-12-27/long-covid-mecfs-health-damaging-relationships-crisis/103205564
Besides the title it has some statistics, and otherwise talks about the social aspects of either trying to not catch , or having caught it and suffering consequences. I recommend reading, as parts of it describe my life.
@novid @covid19

ScruffyJunco,

@viq @novid @covid19 The long-term impact of COVID is just so terribly sad. And I feel despondent with the widespread cognitive dissonance. So many people have fooled themselves into thinking we’re back to normal. Nothing is normal anymore.

tomkindlon,
@tomkindlon@disabled.social avatar

“we have demonstrated that there were no statistically significant differences in the retinal microvasculature of patients with syndrome compared to healthy cohorts. Furthermore, no significant structural differences were observed in the macular retinal nerve fibre layer (RNFL) & ganglion cell layer (GCL) of the study participants”

https://www.mdpi.com/2313-433X/9/11/234

@longcovid
@covid19

tomkindlon,
@tomkindlon@disabled.social avatar

🧵
“Existential crisis: how patients helped us understand what it's like to lose your sense of identity and purpose in life”

The authors summarise findings from three interview rounds in UK with 80 people with .

https://theconversation.com/existential-crisis-how-long-covid-patients-helped-us-understand-what-its-like-to-lose-your-sense-of-identity-and-purpose-in-life-211223

@longcovid @covid @covid19

1/

CassandraZeroCovid,
@CassandraZeroCovid@mastodon.social avatar

@maggiemaybe @qotca @tomkindlon @longcovid @covid @covid19

This is inhumane - and too typical of treatment of those with

qotca,
@qotca@mastodon.social avatar

@maggiemaybe @tomkindlon @longcovid @covid @covid19

Whew I'm so sorry you're going thru this 🤬. So frustrating.

Hard to advocate for yourself when you're so sick. ❤️

tomkindlon,
@tomkindlon@disabled.social avatar

SARS-CoV-2–Specific Immune Responses in Patients With Postviral Syndrome After Suspected -19

Free:
https://shorturl.at/vHKM0

“Our data suggest that millions of Americans presenting with PVS resembling NeuroPASC were indeed exposed to at the beginning of the pandemic, and they deserve the same access to care and inclusion in research studies as patients with NP with confirmed diagnosis”

@covid @covid19 @longcovid

brianvastag,
@brianvastag@sciencemastodon.com avatar

@tomkindlon @covid @covid19 @longcovid Oh hey it's Ryan Prior in the photo.

cavyherd, (edited )
@cavyherd@wandering.shop avatar

@tomkindlon @covid @covid19 @longcovid

What is this "end of the pandemic" of which [they] speak?

tomkindlon,
@tomkindlon@disabled.social avatar

“Long-term health consequences among individuals with SARS-CoV-2 infection compared to individuals without infection”

Free:
https://rb.gy/2vr56

“Even after more than one year, individuals with SARS-CoV-2 infection showed an increased risk of various health complaints, functional limitations, & worse subjective well-being, pointing toward profound health consequences of infection relevant for public health”

@covid @covid19 @longcovid

tomkindlon,
@tomkindlon@disabled.social avatar

“Pathophysiology, diagnosis, & management of neuroinflammation in ” (BMJ)

https://tinyurl.com/4vxahkxc

Includes patient commentary:
“As a doctor myself, I am all too aware of poorly understood clinical presentations. I now carefully frame how I tell a patient their test results are normal. Instead I tell them that the results don’t explain their symptoms. This avoids a misunderstanding that I might think their symptoms are imagined or due to anxiety”

@covid @covid19

tomkindlon,
@tomkindlon@disabled.social avatar

Long-Term Dysfunction of Taste Papillae in SARS-CoV-2

https://tinyurl.com/yc3herd2

“We performed fungiform papillae biopsies on 16 patients who reported taste disturbance lasting more than 6 weeks after […] infection.” “In all patients, we found evidence of , accompanying immune response and misshapen or absent taste buds with loss of intergemmal neurite fibers”

@covid @covid19 @longcovid

tomkindlon,
@tomkindlon@disabled.social avatar

British Medical Journal: How can I support my colleague returning to work with

“Remember that no two people with Long Covid will be the same in terms of their challenges, so the approach to returning to work needs to be bespoke and may look different to others.”
BMJ Careers by Abi Rimmer

MEA summary:
https://meassociation.org.uk/2023/09/bmj-how-can-i-support-my-colleague-returning-to-work-with-long-covid/

Free fulltext:
https://www.bmj.com/content/382/bmj.p1997

@longcovid

@covid @covid19

bringbackmasksbc,

Thank you everyone for 100 followers! @covid19

kroner,
@kroner@seal.cafe avatar
tomkindlon,
@tomkindlon@disabled.social avatar

The roles of the kynurenine pathway in neuropathogenesis

https://link.springer.com/article/10.1007/s15010-024-02293-y

Review article. "The sustained activation of the KP [kynurenine pathway], associated with cognitive impairments & chronic fatigue, underscores the potential of KP as a therapeutic target & as a possible biomarker for in future studies”

@longcovid

@covid19

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