echo_pbreyer, German
@echo_pbreyer@digitalcourage.social avatar

🇬🇧 : Lead Committees nod off the deal on creating a European Health Data Space, selling out patient rights. This means:

  • Healthcare providers can access our health records without our consent
  • No right to opt-out of cross-border access to our health records
  • Big Pharma, Big Tech and government institutions will have access to our identifiable (pseudonomised) health records without our consent, even to DNA, psychotherapy, sexual disorders etc.
  • We don‘t even have a right to object to such access under national schemes

Read why this deal is totally inacceptable to us : https://patrick-breyer.de/en/pirates-cal

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