"According to a Centers for Disease Control (CDC) report from September of last year, around 18 million adults reported dealing with long COVID as of 2022."
i think the hardest thing about becoming inflicted with a debilitating chronic illness in your 30’s is having to reset your understanding of your own body, your capacity, your energy, and learning to be even more understanding, forgiving, and kind to yourself
and giving yourself time to grieve the person you used to be
i’m still there in that space.
i’m also still convincing myself that my dreams and goals don’t have to change. its the steps i’m taking to achieve them is what has to change.
My new med for RA finally arrived by delivery courier. This is after 6 weeks of talking to the drug manufacturer, 2 speciality pharmacists, doing paperwork, intake phone calls, and finally scheduling a delivery.
The med is covered under a provincial ‘compassionate care’ program because it costs $6,200 USD / month out of pocket.
I share because it’s important to know what we go through. We don’t choose to be sick. We don’t want this. We just want to be well. 💜
Not Quite a Ghost 📚 In this middle grade book, the main character simultaneously deals with a spooky presence in her new house, and a confusing new #chronicIllness. The author does a great job portraying some struggles common to #MECFS and #postCovid : the discombobulating nature of symptoms that fluctuate, shifts in friendships when pals don’t believe/judge you, not being believed by doctors, and some very accurate descriptions of #PEM. Plus, the suspense makes it a great audiobook.