Neferure,
@Neferure@eldritch.cafe avatar

Today is Rare Disease Day. I have a disease that is not particularly rare, but is considered so because it's underdiagnosed, misunderstood and some of the types are extremely rare.

If there were more funding for research and more training for doctors, perhaps we wouldn't be considered rare any more. 🦓

Text "Je soutiens journée des maladies rares le 29 Fév 2024 rarediseaseday.org"

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