Bleuets 🫐
Bananes 🍌
Avocats 🥑
Lait d’amande
Sirop d’érable
20g de protéines de formule
Une bonne façon de commencer la journée
😋 💪🏻👌🏻
*
Blueberries 🫐
Bananas 🍌
Avocado 🥑
Almond milk
Maple syrup
20g of formula protein
A good way to start the day
😋 💪🏻👌🏻
Short night, it affects recovery and training. It is important to listen carefully to your body, set limits and promote recovery. It's good physically and psychologically. (After all, we must also navigate through other personal and professional responsibilities.) Take care of yourself!
For folks who have used PKU Calculator - I've been thinking about winding down the diet management side of the app for quite some time now, as well as winding down iOS and Android apps.
I'm super proud of said apps, but the truth of the matter is that these apps do take a long time out of my life to maintain. If I had a team of developers and testers, then this would be easy. That, and Apple/Google bureaucracy has killed the fun for me.
It’s important to not overeat and looking at calories is a way to achieve that.
But when I take a look at the total amount of calories of just the PKU formulas, it’s a meal. (550 calories). 😒
The only way I found dealing with that is intermittent fasting (time restricted window), eating only 2 meals of food and carefully spread formulas during the day.
One thing I always get stuck on when eating with #PKU is remembering to eat and remembering what I actually have in my cupboards!
So I have my fruit and snack bowls, all filled either prescription snacks, less than half a gram or completely protein free snacks, so I'm less likely to go for the snacks that are more interesting but heavier in protein (yoghurt, crisps etc)
There was a great panel talk by @poconnor about living with PKU and sapropterin.
One of the questions was "are you doing well with phe levels", and one of the points was that how life changes do have a severe impact on phe levels.
As someone who moved house quite recently AND had a job change, I am proof that big life changes as well as changes to routine absolutely do mess up phe levels.
(But look at these spots! The thing that actually should be routine, but almost never comes out like this. Now if only the results were as good as the spots... 🤪)
So, I dreamt that I underwent a surgery where I was implanted with a gadget just a little smaller than a credit card and that was supposed to drastically decrease the amount of phenylalanine I had in my body. 😳
This feels like the end of a very long, hard nearly 3 year journey (started pre-contraception diet in 2021!) but I'm so damn proud of myself for getting through it, and to come out the otherside with a beautiful, happy and healthy baby.
No more carrying around extra water, powder everywhere, bag explosions, spilling on carpet, feeling sick from being too full, midnight forcing to get last one in, but just most importantly NO MORE DRINKS! 🥺