@poconnor@pkutalk.com
@poconnor@pkutalk.com avatar

poconnor

@poconnor@pkutalk.com

Author & Advocate.

WI Speaker. Content editor.

Books
#TheRedHatStories
#LivingWithPKU
#LivingWithMildBrainInjury

#RareDisease #BrainInjury #PKU #ShortStories

https://pigpen.start.page

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soheb, to random
@soheb@pkutalk.com avatar

It hasn't quite hit me that I'll be going to the NSPKU conference this Friday...

poconnor,
@poconnor@pkutalk.com avatar

@soheb ditto, really looking forward to the weekend away.

poconnor, to uk
@poconnor@pkutalk.com avatar

The seen from Hertfordshire, at 23:30 10th May 2024

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soheb, to books
@soheb@pkutalk.com avatar

I forgot to mention I got my kobo ebook reader today!!

See if you can spot any interesting books! Also, please feel free to recommend me some! I have read in ages so I’m trying to find my groove when it comes to reading books!

poconnor,
@poconnor@pkutalk.com avatar

@soheb hey, thanks so much for loading my books there!

I tend to read a lot of sci-fi & fantasy. Would recommend:
1 the long way to a small, angry planet by Becky Chambers
2 the broken earth trilogy, NK Jemisin
3 murderbot diaries, Martha Wells

pcublogue, to random
@pcublogue@pkutalk.com avatar

Hey everyone!
I need help for a short test. I've been told by one person that the articles take forever to load (2+ min) which I find odd since it takes me half a second to load them
Could you try to open 2-3 and let me know if everything is fast?
Thank you! 🙏🏻
https://phenylcetonurie.ca/

poconnor,
@poconnor@pkutalk.com avatar

@soheb @pcublogue yeah, all seems to work fine for me.

poconnor, to shortstory
@poconnor@pkutalk.com avatar

Last Chance! The Red Hat Stories Kickstarter ends tomorrow. Fully funded, so it will be published.
Grab your copy @ Kickstarter .com & search ‘the red hat stories’

🇬🇧

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poconnor, to writing
@poconnor@pkutalk.com avatar

May newsletter from PigPen 🐷🖋️ , , &

🚨 costs in England & Wales go up!

📣 NSPKU conference & month

🧑‍🔬 Help with research

🥳 🥳 funded! Last chance to join us in the which closes on

https://buff.ly/3Wp8jJM

soheb, (edited ) to Youtube
@soheb@pkutalk.com avatar

In PKU news, a good friend of mine Paul has updated his PKU Insights YouTube channel to discuss some of the new things in the future.

You can check it out here (and subscribe to the YouTuvbe channel!)

https://www.youtube.com/watch?v=iMPr16eAuGo

poconnor,
@poconnor@pkutalk.com avatar

@soheb thank you! The increase in prescription costs is an issue for those with PKU in England, so hoping to alert as many folk as possible 🙏

poconnor, to random
@poconnor@pkutalk.com avatar

When every month is … 🥳

https://www.instagram.com/reel/C6betLNoKnm/?igsh=YjBta3IydnhiMzE3

poconnor, to 13thFloor
@poconnor@pkutalk.com avatar

The second proof of arrived just in time for !

This is my first work, an anthology of set on transport. The is looking great, nearly ready for the backers.

Am especially proud of the dedication to my wonderful writing teacher.

There is still time to back the book. Go to Kickstarter .com and search "Red Hat Stories".

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hosting, to fediverse
@hosting@toot.io avatar

Ghost is federating over ActivityPub to become part of the world’s largest publishing network.

https://activitypub.ghost.org/

poconnor,
@poconnor@pkutalk.com avatar

@soheb oooh this is big. I don’t fully understand it, but I know it’s big. Will have to do more reading . Thanks for flagging it for me

pcublogue, to bluesky French
@pcublogue@pkutalk.com avatar

Just took a quick look at in case I would have the surprise to find people from the community.

Answer: Nah.

At least, Bluesky would have been a better choice than anything related to or even , but no. There's no movement.

I have pretty much left Twitter, I'm progressively leaving Instagram and I do everything I can to encourage people to subscribe to my blog so they can stop relying on Facebook.

poconnor,
@poconnor@pkutalk.com avatar

@pcublogue @soheb I noticed that you have comments open on your PCU blog. I’m starting to think that is the way to go, to keep the conversation and control of the conversation in house.

In terms of marketing, who knows which of the best platform is. The are still so many people on Facebook.

soheb, (edited ) to random
@soheb@pkutalk.com avatar

I forgot to share the good news!

The last result was 413umol/L - looks like creating had little effect on my phe levels. (Well, my levels before were 300, so could be? But before that it was 481 and 556, so… 🤷‍♀️)

https://pkutalk.com/@soheb/112226425483912059

poconnor,
@poconnor@pkutalk.com avatar

@soheb amazing, that’s good news

I had the opposite and for some reason my blood levels had doubled to over 800 .

What had I done? Who knows.

Though, I was a stressed little Easter bunny, thanks to my kickstarter…

poconnor, to random
@poconnor@pkutalk.com avatar

A lovely afternoon, and I plan to enjoy sunshine and the success of my first .
Also, paid for the conference in May & look forward to seeing everyone.
Brief bitof light reading below if you’re interested, otherwise a few photos of to send you into the weekend with a smile
https://pigpen.page/kickstarting-the-red-hat-stories/

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poconnor, to photography
@poconnor@pkutalk.com avatar

Cheeky Red Hat photo shoot, courtesy of Z Sevcikova.

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poconnor, to Pubtips
@poconnor@pkutalk.com avatar

The Red Hat Stories will be published! A huge thank you to all those who have supported the book so far - especially @soheb

You can still participate as the campaign will run until May the fourth (). Go to Kickstarter .com and search “The Red Hat Stories”

Thank you all

poconnor, to books
@poconnor@pkutalk.com avatar

The Red Hat Stories Kickstarter is nearly there - 87% funded!

You guys are amazing! Tell your friends about this great campaign which is almost certain to happen.

If we reach 100%, all current and future pledges will be honoured.

Go to Kickstarter . com and search "The Red Hat Stories"

poconnor, to books
@poconnor@pkutalk.com avatar

The Red Hat Stories Kickstarter is 70% funded after a single weekend!

Thank you all for the amazing response. If we reach 100%, all current and future pledges will be honoured.

Go to Kickstarter . com and search "The Red Hat Stories"

soheb, (edited ) to books
@soheb@pkutalk.com avatar

Excellent news to the Bookstodon community!

@poconnor's "The Red Hat Stories" book is approaching 80% funding on kickstarter!

Just £154 to go, and you will have a book full of short stories that are interconnected by an independent autor!

Pledge a donation to the kickstarter here:

https://www.kickstarter.com/projects/328522180/the-red-hat-stories

poconnor,
@poconnor@pkutalk.com avatar

@soheb thank you! I was just coming here to post to something.

“Wot he said!”

😁😁

soheb, to transit
@soheb@pkutalk.com avatar

Took my bike to Halfords on 12th March to get it repaired.

They kept saying it would be repaired, but they never got back to me.

I had to chase them so many times just to get the story that the supplier said nothing to them. I can believe that, but why they never bothered chasing it up when that was their own self-imposed deadline is beyond me.

Eventually yesterday I asked to my bike back as they were never going to fix the issue.

poconnor,
@poconnor@pkutalk.com avatar

@soheb who did you purchase it from initially? Was it Halfords, and if so is the end of their guarantee near? Were they just waiting it out?

poconnor,
@poconnor@pkutalk.com avatar

@soheb if you haven’t already done so, then join the London cycling campaign. You get discounts on local bike shops and gear et cetera. Most importantly, they cover you with third-party liability insurance as a member.

poconnor,
@poconnor@pkutalk.com avatar

@soheb in that case, check your home & contents insurance as they might offer 3rd party?

soheb, to books
@soheb@pkutalk.com avatar

Excellent news, book gang!

@poconnor's new book - The Red Hat Stories - has reached nearly 60% funding in less than 24 hours!!

Let's keep the momentum going!

Go and give your pledge to an independent author, and feel good knowing you'll get a great book in the process!

https://www.kickstarter.com/projects/328522180/the-red-hat-stories

#books #book #bookstodon #shortStories #shortStory #TheRedHatStories #WroteThis #Writing #WritingCommunity #kickstarter #independent

poconnor,
@poconnor@pkutalk.com avatar

@soheb it is amazing! Thank you for posting.

What a day today :)

poconnor, to shortstory
@poconnor@pkutalk.com avatar

Hullo there, The Red Hat Stories is now available on Kickstarter.
➡️Rewards start from £1
➡️A limited number of ‘Book Treat Tins’ available.

Not interested in books, but want to help?
Got you covered. Plus, my dog will be happy as she gets a treat for every £1 pledge.

Intrigued? Link in bio :)

Find out more on or through link in bio

poconnor, to animals
@poconnor@pkutalk.com avatar

Friday afternoon energy levels

poconnor, to london
@poconnor@pkutalk.com avatar

April is Awareness Month which means it is obviously the best time to try something new 🤣 So...I'm launching a for my new book this weekend.

These stories take place above and below the streets of . They explore the connection between strangers, the assumptions we make, and how overlooked encounters have unforeseen effects.

Sounds interesting? Link in bio.

video/mp4

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