@C19LAP@mastodon.world
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C19LAP

@C19LAP@mastodon.world

The COVID-19 Longhauler Advocacy Project (C-19LAP) is a 501(c)(3) dedicated to advancing the understanding of #LongCOVID and it’s associated conditions & expediting solutions and assistance for #Longhaulers & their families through advocacy, education, research & support. Longhauler-Advocacy.org HELP US CONNECT W/ THE #LONGCOVID, #CHRONICILLNESS & #DISABILITY COMMUNITIES! Follow & share & tag! #FBLC #C19LAP

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C19LAP, to random
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Require hospitals to provide COVID data and bed utilization metrics - Sign the Petition! https://chng.it/8gKH4hhgTf

C19LAP, to random
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#LongCOVID #LifeInsurance

Bishof said, “As a patient advocate, I urge insurance providers to reassess their policies and embrace a more inclusive approach that recognizes the ongoing challenges faced by Long Covid patients. It’s imperative that we support and protect these individuals, not isolate them further.”

https://clearhealthcosts.com/blog/2024/05/getting-a-new-life-insurance-policy-will-longcovid-be-a

C19LAP, to random
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Are you looking for a safer, collaborative, private community space for ? Please consider joining our main FB group or one of our 60 chapters, all private groups with protections and moderators to ensure a safe, accurate, supportive environment.

https://docs.google.com/document/d/1JKlXnjp55dxnqqa6ZPjvJTf4oZxLwjv5wC_jdWCIYNY/mobilebasic

C19LAP, to random
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Senate Resolution 590 which would formally recognize will not pass without your help! Formally recognizing Awareness Day helps legitimize and destigmatize Long COVID and opens up several other doors for us for awareness purposes which helps our cause across the board!

You do not need to have Long COVID to help support this effort & our community! Long COVID awareness is COVID preparedness
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C19LAP, to random
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Preventing a infection is the only way to prevent . Each COVID-19 increases your chances of developing . Each infection can be different. Do not use past infection experiences to make decisions about your level or risk for . It is irrelevant.

Visit the toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action, now through March 15th! Please share actions on all platforms using & tag us!

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C19LAP, to random
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As Long COVID Awareness Day [March 15th] approaches, join in raising and urging to .

Check out our here: longhauler-advocacy.org/longcovidad24

There are many opportunities to participate, including urging @potus to discuss during the address, contacting various congressional committees and members of , urging formal recognition of , events,
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C19LAP,
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working with the media, submitting your experiences & messages to the world and medical community, getting T-Shirts & profile pictures, and more!

Be sure to follow our daily actions, participate as your spoons permit, and help us share widely! Always use when posting!

demands an immediate response, and therefore, an all-hands-on deck approach. Let’s do this!
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C19LAP,
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Longhauler-advocacy.org/longcovidad24

C19LAP, to random
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Long COVID Awareness Day T-Shirts are now available!
https://www.longhauler-advocacy.org/longcovidad24

Join us to raise awareness about Long COVID this Long COVID Awareness Day, March 15th!

On Long COVID Awareness Day, March 15th, take to social media, post a picture of you wearing your shirt, and tell us why you need Long COVID funding now! Be sure to tag us on whichever platform you use and ALWAYS use the and so we connect to one another!

C19LAP, to random
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Do you want to see a local billboard?

We have already done 19 billboards in 19 states! Thanks to our Giving Tuesday efforts, we have $5,000 more to put towards public education & awareness efforts.

If you want to see a billboard near you, please view the directions within the form linked below, and complete the form.
https://docs.google.com/forms/d/e/1FAIpQLScubXupcKCD2FW50YlnCpFezz0GQgNapbgUWfF-Jl8G1CPkqA/viewform

C19LAP, to random
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Check out our billboard in Meriden CT! Thanks to one of our members from the area who sent this in! It feels so amazing to see them up & the word getting out!

Want to see one in your state?

Donate here & add state name to notes: bit.ly/C19LAPBILLBOARDS

C19LAP, to random
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Go to longcovidmoonshot.com for the info, walk through/ directions & more!

C19LAP, to disability
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If you could give the world a message about in 1-2 sentences, what would you say?

C19LAP, to disability
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What have you developed as a result of ?

is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!

C19LAP, to disability
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What type of medical provider have you found most helpful in managing your (if found).

C19LAP, to random
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We’ve sent over 1,500 letters to members of Congress asking them to support the in a little over a day!

In 30 seconds, you too could help tens of millions with ! Please complete the action below and widely share. TY!

https://actionnetwork.org/letters/its-time-to-support-the-treat-long-covid-act-as-us-disability-rates-hit-an-all-time-high?source=direct_link&

C19LAP, to random
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“ending the COVID Pandemic” is asinine, and a failure of science and medicine. Politics have no place in science, and the science about the consequences of & are being denied & ignored, costing millions their life, and health. The healthcare system has crumbled, the economic fall out is astronomical. COVID is killing & infecting daily and no one has a cure or truly effective treatment. Shame on @who & every other entity failing the public they took an oath to protect.

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