@BernieDoesIt@mstdn.social avatar

BernieDoesIt

@BernieDoesIt@mstdn.social

I just want to stop as much human suffering as possible. I don't think that's too much to ask. #ActuallyAutistic

Profile picture: A much younger Bernie Sanders picking up trash in a public park.

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RickiTarr, to random
@RickiTarr@beige.party avatar

What if the weird thoughts I have popping into my head are animals trying to telepathically communicate with me?

BernieDoesIt,
@BernieDoesIt@mstdn.social avatar

@RickiTarr Great, now I have to set my "days without an annoying intrusive thought" counter back down to zero. Thanks a lot, Ricki!

noellemitchell, to twitter
@noellemitchell@mstdn.social avatar

deleted_by_author

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  • BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @noellemitchell Imagine being so dumb you think that people that run bots wouldn't be willing to pay a small fee.

    JeremyMallin, to actuallyautistic
    @JeremyMallin@autistics.life avatar

    It seems that I'm better at dealing with major life or death emergencies that every day struggles. Why is that? Is that autistic thing?

    @actuallyautistic

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @JeremyMallin @actuallyautistic I remember reading that since our nervous system is sending us alarms all the time, when there's a crisis it's not really that much more alarming for us.

    servelan, to Autism
    @servelan@newsie.social avatar

    That 'repetitive behavior' is frequently an autistic person's attempt to self-calm, not something that needs to be medicated away...not sure I'm ok with this.

    Groundbreaking Study Reveals Autism’s Genetic Triggers and Therapeutic Hope @actuallyautistic
    https://scitechdaily.com/groundbreaking-study-reveals-autisms-genetic-triggers-and-therapeutic-hope/

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @servelan @actuallyautistic It's a mouse study. There's a lot of work required to see if it's applicable to humans at all.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @servelan @actuallyautistic Yeah, there's good reason to be concerned.

    BernieDoesIt, to ADHD
    @BernieDoesIt@mstdn.social avatar

    @actuallyautistic I'm in the process of switching one of my meds to another one because my inattention was starting to get bad. I was really apprehensive because it's switching from one selective reuptake inhibitor to another, and withdrawal symptoms for that can be pretty intense. But within a few hours of the first dose I could pay attention to things again and my thoughts started to seem more related to each other. No withdrawal symptoms yet (knock on wood). I'm just so happy about it!

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @CuriousMagpie @actuallyautistic Yeah, it's the smoothest meds change I've done so far.

    ScruffyDux, to actuallyautistic
    @ScruffyDux@fosstodon.org avatar

    @actuallyautistic I knew depersonalisation and derealisation commonly co-occurred with autism. But for some reason it didn't click that it's an actual self-contained medical condition.

    Just found the Cambridge Depersonalisation Scale. If you want to try for yourself here's a PDF link:

    https://www.johnhartlandtherapy.com/downloads/Derealization/4%20Cambridge%20depersonalisation%20scale.pdf

    A total score of 70 or higher indicates a dissociative disorder.

    I got 147.

    I just thought I was highly existentially philosophical. Here we go again comorbidities! #ActuallyAutistic

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @ScruffyDux @actuallyautistic They're also symptoms of #CPTSD, which we autistics get to experience at truly alarming rates.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @GreenRoc @ScruffyDux @actuallyautistic Well, yes, but does whatever is controlling your body have imposter syndrome?

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @GreenRoc @ScruffyDux @actuallyautistic I'm so sorry to hear that, Green Roc. When I had depersonalization the driver always wanted to protect me. That must be horrifying.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @GreenRoc @ScruffyDux @actuallyautistic I do care, and I wish I could do for you.

    ScruffyDux, to actuallyautistic
    @ScruffyDux@fosstodon.org avatar

    @actuallyautistic I just learned that stimulation of the body's proprioception systems in turn down regulates some aspects of the nervous system that are typically overactive for us.

    I also learned proprioception stimulation is something Occupational Therapists prescribe for autistic clients.

    Wondering if anyone can share any such exercises or methods an OT has prescribed for them?

    Deep muscle & tissue stimulation is the general notion I've gathered so far.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @Vincarsi @ScruffyDux @actuallyautistic Wow, after reading this thread and thinking a bit I've decided that my proprioception is actually pretty accurate and my dyspraxia is entirely because of motor planning issues. I've learned a little bit more about myself.

    pathfinder, to Autism
    @pathfinder@beige.party avatar

    @actuallyautistic

    I once wrote about how it was not unrealistic, to think that there was no such thing as an un-traumatised autistic. About how so many of us have known bullying and persecution simply for being different. Not even always for what we may have said or done, but often for simply standing out; in all the ways that we didn't even know we were. How just simply being, was so often an excuse to be attacked or punished. That our very existence, even as hard as we tried to mask, whether we knew that was what we were doing or not, was the cause of so much pain.

    All the scars we carry from misreading situations. Or from believing in something, or someone, and being burnt as a consequence. All the times we've tried to stand up for ourselves, or as often as not for others, and been dismissed and ridiculed. All the misjudgements and disbelieve and times when our intent and purpose have been seen in the ways that were never, ever, meant. The sheer inability for others to see us as we are, or to judge us accordingly. But, always to seem to want to see the worst and to base everything else on that.

    But the more I learn and understand about being autistic. The more I realise that so much of my trauma and the scars that were left, came not just from this overt pain, but from the covert well-meaning of others as well. From my parents and relatives, from friends and teachers. From all the advice and instruction I have received over the years that was meant to shape me in the right way. As a child, to teach me how to grow up, how to behave and act. What was expected and what wasn't. And then, as an adult, how I was supposed to be and how a successful life, with me in it, was supposed to look. All the rules I was supposed to learn, all the codes I was supposed to follow. How to act, how to speak, what to feel, when to feel it. What I was supposed to do and how I was supposed to be.

    Not in any unusual way. Not in any way that you weren't supposed to raise a child, well a normal child anyway. That's what makes this so covert. If you were trying to do this to a child knowing that they were autistic, then it's overt abuse. It is ABA, it is infantilising and punishing a child for always failing to become something, that they had no more chance of becoming than a cat has of becoming a dog. But for those of us who didn't know we were autistic. It was simply the constant hammering of the world trying, without even realising it, to fit a round peg into a square hole and all the pain and disappointment that came from their failure to come even close.

    For me, what made this worse, was that it wasn't as if I didn't know that I was different, not in my heart, but that I thought that I shouldn't be. That I should be able to learn what I was being taught, that I should be able to follow the guidance. That I wasn't any different really from anyone else and so if I failed to act in the right way, or react the way I should, for that matter, then it was my fault. All the patient sighs and familiar looks, simply became just another reinforcement of my failure. Even being told off for the simplest things, became a reminder that something that I should have been able to do, was beyond me and always for the only reason that ever made any sense; that I was broken, that it was my fault somehow.

    Is it any wonder that so much of my life has been about trying to justify myself in the light of this, of trying to become that "good dog". Of judging myself against an impossible standard. A constant lurching from one bad to choice to another, and always because I thought they were the right ones. And for each new failure and inability to even come close, another scar, another reminder of what I wasn't. Further proof that my self-esteem was right to be so low. Of how I was such a failure and a bad person. That I was never going to be a proper son or brother or friend. Because I couldn't even be what I was supposed to be, let alone what I should become.

    Looking back, I can't help thinking about how much of my life I spent living this way; of trying not to repeat the sins of my past. Of not repeating the actions or behaviour that led to those past failures and trauma. Of, in fact, all the effort I put in to not being myself. Because that, I realise now, was what I was trying to do. I was that round peg and trying to hammer myself into the square hole. Because everything I had learnt had taught me to think that this was how I had to be. That this was how you grew. And in so many ways, I can't help feeling angry about this. About the wasted years, about the scars I carry that were never my fault. About the way I was brought up, even though none of it was ever meant, but only ever well-meant.


    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @pathfinder @actuallyautistic Living autistic and trauma-free is an impossible goal, but I feel like I've done a pretty good job of stopping the cycle of traumatization with my children. They've gone through trauma, but a lot less than I had at their ages, and they aren't having PTSD flashbacks, like I did at their ages.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @glen @pathfinder @Tooden @actuallyautistic Have you taken an autism test? Maybe you should. On this one, you should treat "maybe", "sometimes", and "sort of" as yes.
    https://embrace-autism.com/raads-r/

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @glen @pathfinder @Tooden @actuallyautistic Yeah, welcome to the club! Membership benefits include being able to use our awesome hashtag and having a good explanation for why society seems so strange and painful for you.

    It looks like you got the deluxe "AuDHD" package, which entitles you to relate to 90% of other autistics' traits and 90% of other ADHD people's traits, but not the same 90%.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @glen @pathfinder @Tooden @actuallyautistic The big advantage of being AuDHD is that some of the more painful traits actually cancel each other out.

    The big disadvantage of being AuDHD is that some of the traits conflict with each other, the classic example being desiring more structure and order in your life but being completely incapable of creating and keeping that order.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @filmfreak75 @glen @pathfinder @Tooden @actuallyautistic Oh yeah. They would rule out autism for all kinds of nonsensical reasons.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @filmfreak75 @glen @pathfinder @Tooden @actuallyautistic I can see how that would complicate things.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar
    Tim_McTuffty, to actuallyautistic
    @Tim_McTuffty@beige.party avatar

    Diary of an ASD Squirrel. Day 166 , Friday 12/04/2024

    TL:DR

    Up at 6am , busy this morning get chores out of the way in time to vamoosh down to the GPs for my Physio’s appointment.

    The cats were not impressed, no time for too much fussties so far today (they’ve buggered off to bed in disgust ! 😆 )

    Got to the GPs in good time - a good 10 minutes early - so sat , more or less on my own, & merrily got anxious for no good reason ! Thankfully the Physio was a nice chap who saw me a little early & it was a quick consultation, exercise , freeze me foot periodically & get some support for my shoes.
    Also Project WOOF is back on , I can go walking & the schedule with the supports (one has to break them in slowly apparently) fits with my schedule for getting back exercising.

    Need the supports, so that (in my little Squirrel mind ) = one last day of resting it - just to make sure 😆

    Had a great day on ESO, I have a character build that is actually surviving! I can run dungeons & not die, even solo ! (This is very unusual for me ! )

    Been trying to fine tune the skill set, but honestly I can’t think of another setup that will work as well !
    I might tweak the skill bar layout, but that’s all.

    Pizza was had for tea, sadly they sent the wrong on, it was a chicken one so acceptable.

    The stress from the GP acting so poorly earlier this week has left me stressed - the dizzy spells are back!

    Final Thoughts.

    Today was a good day, & yet ASD / depression has to have its pound of flesh.

    Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

    @actuallyautistic
    #TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @Tim_McTuffty @actuallyautistic ASD does NOT have to take its pound of flesh, but it can take years to arrange your life so it doesn't.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @Tim_McTuffty @actuallyautistic You were doing it "wrong." It's just that "right" wasn't what you were expecting it to be.

    janetlogan, to music
    @janetlogan@mas.to avatar

    Mama Cass Elliot - Different

    I'm "different" on a number of axes. And I've come to accept and even celebrate those differences. Who want to be the same as everyone else?

    💜 :blobhug2:

    https://youtu.be/i7rAaYFFeZk?si=vIhoQexDu0JFAFjM

    #music #Different #MamaCassElliot

    #spoonie #ActuallyAutistic #trans #transgender #pagan

    @spoonies @actuallyautistic

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @Tooden @janetlogan @spoonies @actuallyautistic Even as a kid I never wanted to be the same as everyone else.

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @Tooden @janetlogan @spoonies @actuallyautistic Been there, too. Sorry to hear that.

    GottaLaff, to random
    @GottaLaff@mastodon.social avatar

    👋🏼 O.J. Simpson, who was accused of and ultimately acquitted of the brutal 1994 slayings of his ex-wife and her friend Ron Goldman, [responsible for thei deaths in civil trial] has died, according to his family. He was 76.

    "On April 10th, our father, Orenthal James Simpson, succumbed to his battle with cancer.”

    https://trib.al/PIpsjxk

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @GottaLaff Charming. 🤮 How did they react?

    GottaLaff, to random
    @GottaLaff@mastodon.social avatar

    The administration has finalized a national standard to limit dangerous 'forever chemicals' found in nearly half of the drinking water in the US -CNN

    BernieDoesIt,
    @BernieDoesIt@mstdn.social avatar

    @GottaLaff The Trump administration would have made there be a minimum level.

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