The reality is even worse than the article makes it out to be. Get married while both are disabled and they will cut both your benefits, pay and medical, they will try to trick you into saying you are married or force common law marriage on you at every turn. It makes getting food stamps harder, it cuts the amount of care giving each person can get even if they have separate needs, and god forbid you need a new (to you) vehicle or place to live because you can’t save up enough to make that happen. It’s a nightmare where one clerk at a doctors office can put down spouse and ruin their lives and lead to one or both dying.
I used to work with a blind guy, when everyone else did sex ed at school they used to put him in a seperate room to do worksheets as they assumed he wouldn’t need it.
Wait. Are there not also handicapped stalls in each the women’s and men’s bathrooms?
I see that configuration all the time here. Men’s, Women’s, each with handi-capped stalls, plus one or two Disabled/Family/Gender Neutral stand-alone restrooms.
No, there are not handicapped stalls in the other bathrooms. In this particular art gallery/museum the womens’ and mens’ are very difficult even for some disabled people who can walk, because each is fitted with two fire doors (heavy doors that self close) - one to get into the sink area and another to access the stalls area.
If it was like @Tippon was saying, I might feel differently but this is in a new part of the building and they are only a few years old. There’s also an enormous supply closet next to them. It really shouldn’t have to be like this.
It depends on the building. I’m in the UK, and a lot of our buildings are old, and have been updated over the years to add facilities. For example, if the toilets were installed before disabled toilets were a thing, fitting them in with the regular toilets would need a complete renovation. Adding a separate room still needs work, but maybe not as much.
It should be noted that I am just a man who does not use these bathrooms but I have some thoughts. My first impressions were from a queer perspective.
We have a pretty similar setup at school. It certainly doesn’t feel great to me. It always felt like a shortcut used by administration to answer the ‘inclusive bathroom issue’. It creates a weird fear in my mind of using one while I could be using another but instead I’d be blocking someone who needs the special infrastructure in the toilet. One of them has also repeatedly been locked by the administration because “people have sex in them” which just irks me so much. They would never close any other bathrooms if that happened in them - which it most certainly does.
Okay, that became a rant but um, these are my thoughts.
“Track and graph” FOSS from Fdroid may get you part of the way. It doesn’t do everything that you want, but maybe will help. Good luck on your journey.
I'm an autistic spoonie and this would not appeal to me at all, sorry. It just seems overwhelming and like it would require more energy to use than it would save, I also despise and really struggle with filling forms or questionnaires and stuff like that, and avoid it like the plague. And then there's the privacy aspect of such personal data I would worry about. So yeah, not for me.
But that doesn't mean it's not a good idea that's worth perusing, we all vary so widely in needs, and there are clearly others who would find it really helpful, so good on you for trying to put something out there that might make some people's lives a little easier and I wish you the best of luck with it.
That’s super fair, and I appreciate this perspective a lot! I’ve thought about this a bit myself–part of the challenge i think is making something that I would use, because I’ve never really had a phone app that actually works for me in the realm of time management and similar for this exact reason. It’s a lot of energy to learn an interface and consistently input enough data that the app could even work. I think that will be the main difficulty, trying to make the app as effortless to use as possible while still maintaining the functionality I’d want.
Data privacy i think won’t be too hard to deal with–I’d intend for the app to be free, not have any login requirement, and for all the data to be stored locally. I have a lot of concerns about privacy (both as a general thing and because of my ptsd) so this is another part of making an App That I Personally Would Use. Thank you for the kind words and your perspective :)
We have mood trackers, med trackers, sleep trackers, weight trackers, activity trackers, habit trackers, finance trackers, menstruation trackers, and whole host of others, but not energy trackers. I guess activity ones are the closest, but they don’t really serve this purpose well.
(Edit: After running a quick search, there actually are energy level trackers, so I’m going to take a look at some of them and see if they fit the bill.)
Theoretically, you could use a money tracker, but it’ll be missing the “learning over time” part which is probably the most important feature you want.
My logic for the money tracker is that you input your energy levels as a certain amount of dollars or whatever currency and instead of tracking “expenses”, you assign a currency value to the energy you think a particular activity “drained” from you.
Instead of spoons, you could use like $10 as an equivalent to one spoon. So $100 is ten spoons, etc.
Only problem is that they’re made to track your finances over time instead of per day. So you’d have to manually go in and “reset” how much “money” you have each day, which itself can probably be one spoon used up already.
Still, though, I feel like that’s actually kind of a good starting point if someone wanted to develop an energy tracker.
I find financial transactions and batteries to be good alternative explanations for people who don’t get why it needs to be “spoons” because everyone either deals with money or batteries on a daily basis.
A “body battery tracker” might be a good approach as well.
Admittedly, I probably wouldn’t use it because it ironically takes too much energy for me to figure out how much energy I’ve used up for any given activity.
Lol, I actually think several people might run into this issue. Made to track energy, too tired to add data to the tracker.
Edit 2: Okay, I actually found one Android app that does specifically use spoon theory. Problem? It only has 3 stars, zero reviews, and I don’t really trust anything that requires an account to function. Either way: play.google.com/store/apps/details?id=com.spoonie…
Also found a few others which aren’t quite there (one’s more focused on mood, but has energy as an additional data point, some also have no actual reviews and aren’t exactly rated highly), but they might serve a purpose:
My problem with a lot of these apps, though is either requiring personal info or having excessive permissions (in addition to being closed source). Looking for similar stuff on F-Droid doesn’t yield many results other than mood and activity trackers. Though, I might take a look at some of those and see if they don’t offer an “energy” feature along with the other features.
I’ll definitely look into these apps. The money tracker thing might be a good starting point!
On the point of spoons and whether folks would understand their significance: one thought is that, I could maybe have different settings to change the language and visuals to batteries or something similar? It’s definitely something to implement much later on, after i figure out the core functionality, code everything, make the first set of visuals, etc etc. But I definitely will keep that in mind!
Data privacy is definitely on my mind with this whole thing. It’s kinda why im on lemmy, and moved my laptop to linux, and generally am very vigillant when it comes to my online privacy. Ideally the app would be free, open source, have no login requirements, work without internet, and store data locally.
Thank you for your insights! If you do find anything notable with those apps, please let me know :)
I remember watching a documentary a long time ago about somebody similar who was a kid growing up. You could see him biking around his neighborhood while clicking. And his eyes were missing just like this person in the documentary.
A large part of the one I watched was about the kid being forced to learn caning and other techniques despite already being familiar with echolocation.
I get asked about my mask a bunch on the street. Honestly I’ve default to pointing to the trees and saying “allergic” which is true (MCAS, so allergic to everything under the sun including the sun) but not the only reason I wear a mask
So if anyone wants an excuse, feel free to use that, even if you’re not allergic. People should keep their noses out of your mask, so I think giving a short answer is the best, even if its not true. They are not owed any reason just because they ask
That sounds nice. The last time I saw more than half people in masks was when I was waiting in line to get the booster. I kind of contributed to that by pointing anyone who entered after me towards the box with masks. It was a quite refreshing and completely out of the norm experience here. In this country I get asked by maskless doctors, who are aware that a lot of new patients come to them with long covid, and agree with my opinion that i have long covid, ask me why I wear it.
in that case I just go “I am allergic to everything under the sun including the sun and wearing a mask helps me keep control on reactions” for a shorter answer, perhaps mention perfumes and not wanting to be exposed to smells and stuff idk
Allergies are year round for me sadly, so I honestly get away with not pointing at trees and just saying “allergic” as well. And if people were to get confused, I add “to everything” and then walk away
Yeah ultimately they are not owed a reason. I if people actually ask instead of being aggressive, I usually prefer to cite scientific studies the best I can at that moment and use this as an opportunity to educate, I want them to wear them too to help me stay safe after all. One way masking is much much worse than, well, all around masking. but it is tiring.
I also had social anxiety, i was even hospitalized for it. Seeing maskless people nowadays is borderline triggering to me. Which means I do not go out unless i I need to. Anyway, i will take feeling awkward over getting more disabled anyday.
IF more people wore masks, you would not need to feel that way about it. Some people might feel the same as you and not say it. Wearing them can empower others to do the same.
I mask up in public too and try to encourage other to do the same, when it’s possible. It can be discouraging to see how few people are willing to do some of us are still out here, trying to minimize the risk to those around us. I like to think of my mask as a small show of solidarity for others who still choose to wear one.
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