AshleyMarineP, 11 months ago Anyone here who has had, or knows someone with, renal angiomyolipomas or tuberous sclerosis? I'm not getting the answers I need from doctors so here I am, fediverse. 🙏 #KidneyDisease #TuberousSclerosis #TuberousSclerosisComplex #ChronicIllness
Anyone here who has had, or knows someone with, renal angiomyolipomas or tuberous sclerosis? I'm not getting the answers I need from doctors so here I am, fediverse. 🙏
#KidneyDisease #TuberousSclerosis #TuberousSclerosisComplex #ChronicIllness
suzieq23, 7 months ago @AshleyMarineP You have probably had answers to this question by now but I have had renal problems from T.S too.
@AshleyMarineP You have probably had answers to this question by now but I have had renal problems from T.S too.
harrybo93, 11 months ago @AshleyMarineP check out https://www.med-mastodon.com , loads of helpful docs and nurses there :)
@AshleyMarineP check out https://www.med-mastodon.com , loads of helpful docs and nurses there :)
AshleyMarineP, 11 months ago @harrybo93 Thanks, I'll have a look!
@harrybo93 Thanks, I'll have a look!
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