Petition: Der Deutsche Bundestag möge beschließen: Die elektronische Patientenakte (ePA) darf nur mit ausdrücklichem Einverständnis der betroffenen BürgerInnen angelegt werden (OPT IN). Da geht doch noch was! 👇
@supernovae Wow, I had no idea you were doing this. Maybe the reason you've had so little pushback is that few other people know you're doing it, either - especially given that a login is required on your instance to see it.
How do I opt out? My account is already opted out of search in my settings, yet I see my posts searchable on your instance.
Their representative polls found that "the further away from the GP, the less people are willing to share their #HealthData" and yet BEUC concludes that while data use by medical profl's should require #OptIn consent, for secondary use by #BigPharma and #BigTech an #OptOut option is enough. ❓❓❓
You want your toots to be searchable and findable, then have Tootfinder index your profile.
It works and the best thing is, it is an opt-in option and will not be indexed blindly without consent.
/ via @antiaall3s